User Tag List

Likes Likes:  6
Results 1 to 3 of 3

Thread: Introducing myself

  1. #1
    Join Date
    Oct 2019
    Location
    Southwest Manitoba, Canada
    Posts
    1
    Post Thanks / Like
    Mentioned
    1 Post(s)
    Tagged
    0 Thread(s)

    Default Introducing myself

    Hi Everyone! I live in the province of Manitoba, Canada. I joined the forum last fall when my 21y/0 granddaughter was diagnosed with vasculitis and Wegners GPA. She has had Rutuximab tx and has had one surgery to shave the cartilage in her nose and had her windpipe stretched due to narrowing, in fall of 2019. September 10, 2020 she will have it all done again. Hopefully she will feel much better afterward.
    The strange thing is that there is another person in our town that has Wegners also.
    So that's about it for me.
    Gram 24

  2. Likes annekat liked this post
  3. #2
    Join Date
    Mar 2012
    Location
    Suburban Columbus, Ohio, USA
    Posts
    2,229
    Post Thanks / Like
    Mentioned
    16 Post(s)
    Tagged
    0 Thread(s)

    Default Re: Introducing myself

    Hi @Gram24

    Sorry to hear about your granddaughter. Sounds like she’s having a rough time with it. I hope she can get into remission soon!! Please keep us posted about her progress.

    This is a good place to get information and learn of others’ experiences with this dumb disease.
    Pete
    dx 1/11

    "Every day is a good day. Some are better than others." - unknown

    "Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD

  4. Likes Masha, Dirty Don, Keith, annekat liked this post
  5. #3
    Join Date
    May 2008
    Location
    Canberra, Australia
    Posts
    1,544
    Post Thanks / Like
    Mentioned
    32 Post(s)
    Tagged
    2 Thread(s)

    Default Re: Introducing myself

    Hey Gram!
    Thanks for joining. You're right - she will feel a heap better after the surgery. It's a shame it can't just be done once and that's that. I hope she's not feeling too poorly. Good that she has another Weggie to talk to though. Do they talk to each other much? Surgery coming up in a couple days. I hope it all goes well. Please let us know!

    Cheers
    Andrew
    Forum Administrator
    Diagnosed March 2003.
    Currently but not permanetly residing in Canberra, Australia.

  6. Likes annekat liked this post

Bookmarks

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •