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Thread: Wegener's and surgery

  1. #1
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    Default Wegener's and surgery

    Has anyone had surgery after diagnosis?
    How do you get ready? Do you have to be in remission? or at least your SED rate being lower if not normal?

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    Default Re: Wegener's and surgery

    It depends upon the type of surgery. If there is no blood involved like a cataract surgery, they let me do that one fairly quickly. But to get my BAHA inserted I had to be in remission for a year. That was a few years ago so check with your doctor about the surgery and find out what their guidelines are. Of course if the surgery is emergency for some life-threatening event, they will do it right away. They usually have me cut back on my maintenance meds like Azathioprine for a few days before and after the surgery procedure. And then they usually increase my prednisone meds. This is also usually done any time I need inpatient care for treating an infection.
    Last edited by drz; 09-01-2020 at 11:53 AM.
    Knowledge is power! Wisdom is using it to make good decisions!

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    Default Re: Wegener's and surgery

    As far as I know we need to increase the pred and take extra antibiotics.
    Alysia
    dx 2008


    Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
    https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
    "You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
    Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.

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    Default Re: Wegener's and surgery

    I was dx'ed with Weg's in 2010. Since then, I have had 13 surgeries -- about half were major, the others were just ho-hum. I don't recall having to do anything special due to Wegs. but I did have to get extra steroids because of adrenal gland failure, which was caused by Wegs involvement in a round about manner with my former pituitary gland. I don't think you will have to do anything particularly different from a healthy person. Just make sure your doctor is aware and they will do the rest. No worries....
    Wegener's (​GPA )- Apr10, Granulomatous Hypophysitis - Apr10, Diaphragmatic Paralysis - Feb16, Bradycardia - Dec16, Fibromyalgia - 2017. (my story)
    Forum Member Map -- world map for you to put a stickpin of where you are located....

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    Default Re: Wegener's and surgery

    For the surgery on my nose I had to be in remission for 2 years, and my pred be at 5mg or less.
    On saying this, my rheumy did say, that if it was an emergency, they wont be waiting for anything, remission or not.

    Sorry I'm only catching this post now.
    I hope, if you have had the surgery, that it all went well, and you are on the road to a pain free recovery.
    Keep Smiling
    Michelle


    Live your life in a way that you wouldn't be ashamed to sell the family parrot to the town gossip - WILL ROGERS

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