Hello to all from 57 years young GPA victim.
story started 2 1/2 years ago on vacation to Spain for intended 2 months.Fter 5 days hospitalised with severe ear/headache and right eye closed and swollen.Intravenous steroids brought vision back and following morning ears punctured to lease poison with grommets fitted.10 days later after mri and ct scans admitted to Granada neurology hospital ,further medication 100 mg a day prednisone and lumber test to get me fit to fly home.
6 months later diagnosed with GPA,,tried 7 infusions of cyclophosphemide with no success and transferred to Rhitixumab.
I have now slowly lost my vision due to high steroid damage and the pseudo tumour along with lung function deterioration and what appears to be the normal side effects of both the disease and meds.
I was wondering if anybody else has the same side condition of the pseudo tumour and vision problems.
would like to hear from anybody that can give any input.
cheers Gary