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Thread: Telling my story

  1. #1
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    Default Telling my story

    I was asked by my Rheumatologist to present my own GPA case and the events leading up to diagnosis to a group of medical students in a couple of months at their annual symposium.

    I was initially misdiagnosed by an infectious disease doctor in Dallas and it almost cost me my life.

    I was given access to the Hospitals research sites while I was admitted and I was able to identify the 'trigger' and the missed symptoms that followed leading up to the actual diagnosis.

    I have been very blessed with amazing doctors since the day I was diagnosed and have managed to keep the wolf at bay by having a partnership approach to my care. I was exceptionally blessed to get a new Rheumy today who is very versed in our disease and committed to continuing the partnership.

    Sent from my HD1907 using Tapatalk

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  3. #2
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    Default Re: Telling my story

    @gunnyl

    Good to hear from you and that all is well!! Hope the good partnership continues and results in good health for you!!
    Pete
    dx 1/11

    "Every day is a good day. Some are better than others." - unknown

    "Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD

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  5. #3
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    Default Re: Telling my story

    Welcome to GPA Highway. May your trip be long and fruitful.

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  7. #4
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    Default Re: Telling my story

    @John S been traveling the GPA highway for 9 years. Was diagnosed 9 years ago this week.

    Sent from my HD1907 using Tapatalk

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  9. #5
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    Default Re: Telling my story

    Hi Gunny, great to hear from you again.

    I'm so glad you have found a knowledgeable specialist.

    Good luck with the symposium
    Keep Smiling
    Michelle


    Live your life in a way that you wouldn't be ashamed to sell the family parrot to the town gossip - WILL ROGERS

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  11. #6
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    Default Re: Telling my story

    Quote Originally Posted by gunnyl View Post
    been traveling the GPA highway for 9 years. Was diagnosed 9 years ago this week.
    Happy anniversary!
    Good to hear that medical students are getting to hear it straight from the horse's mouth (hope you have that saying in the US) rather than what Drs "think" how it effects patients.
    Diagnosed April 1995

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