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Thread: Coronavirus and GPA

  1. #221
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    Default Re: Coronavirus and GPA

    Hi everyone, I haven't logged on for ages but great to read all your supportive comments during these uncertain times.

    Despite our very best efforts to keep Covid away (including disinfecting EVERYTHING that came even close to the front door!) it came for a visit at our house just before Christmas, when the UK's Kent variant took hold - luckily, although I did have symptoms (cough/temperature/loss of taste and smell) the symptoms were very mild compared to many poor folk who have contracted it! I have to confess it was a worrying time, not knowing which way it would go due to taking Azathioprine & Prednisolone but we (the whole family got it!) were looked after amazingly by a 'virtual Covid clinic' at our local hospital, who sent out a pulse oximeter and then called on alternate days for a fortnight to get oxygen readings and check on symptoms.

    Interestingly, I was advised to stop taking the Aza until I felt better and had lost the temperature - this I did, but 2 weeks after stopping AZA my nose started to crust badly and bleed (I'd not had a flare or experienced any wegs symptoms for several years). My rheumatologist couldn't be sure if the Covid had gone for the 'weakest point' or whether it was Aza related. I guess I will find out when my nephrologist starts to decrease the Aza when the Covid situation is way more stable over here!

    Today in the UK they have announced that the Astrazeneca jab will not be given to those under 30 (for once being the wrong side of 50 is a bonus!!��)

    Stay safe & take the jab everyone!
    x

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  3. #222
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    Default Re: Coronavirus and GPA

    This makes me a little nervous. I got 500 mg of rituximab four weeks after my second Pfizer shot.

    Autoimmune-disease drugs may reduce vaccine response; antibody treatments ineffective vs Brazil variant
    https://reut.rs/2POGAST
    Pete
    dx 1/11

    "Every day is a good day. Some are better than others." - unknown

    "Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD

  4. #223
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    Default Re: Coronavirus and GPA

    Christmas, when the UK's Kent variant took hold - luckily
    Why is it ok to call it the UK variant, the South Africa or Brazil variant, but not ok to call it the China virus? Asking for a friend. :-)
    Wegener's (​GPA )- Apr10, Granulomatous Hypophysitis - Apr10, Diaphragmatic Paralysis - Feb16, Bradycardia - Dec16, Fibromyalgia - 2017. (my story)
    Forum Member Map -- world map for you to put a stickpin of where you are located....

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  6. #224
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    Default Re: Coronavirus and GPA

    Over here, findings from most recent data has resulted in all adult household members living with someone who is immunosuppressed being able to get their jab, to try & prevent them passing it on.

    Is it the same over there?

  7. #225
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    Default Re: Coronavirus and GPA

    I need to keep reminding myself that the vaccine does not make me immune. Vaccinated people can still catch the virus. Vaccinated people can still transmit the virus.
    When youíre vaccinated, if you get the virus, you are less likely to end up in the hospital or morgue.

  8. #226
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    Default Re: Coronavirus and GPA

    What makes me even more nervous is that our Rituxin, which I really need and receive, knocks out our B cells and in order to fight COVID we must have our Bcells. My rheumatologist told me the mortality numbers and I have been losing sleep. I probably will not feel safe until herd immunity.
    As far as the vaccine goes, we know we did not get the full effectiveness, but something is better than nothing.
    Last edited by Masha; Yesterday at 04:27 AM.

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