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Thread: Coronavirus and GPA

  1. #61
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    Default Re: Coronavirus and GPA

    Quote Originally Posted by Lea View Post
    I use Budesonide in my nasal rinse. It was REALLY painful the first few times. It felt like brain freeze followed by a stinging and itchiness just under my scalp. It does seem to help a little and those side effects only happened the first few times.

    Keep safe and well.
    Did you read the instructions on how to use Budesonide as a nasal rinse? You need to make a proper mix of distilled water, a saline little packet (sinus rinse) and budesonide. It is in the instructions that you receive when you get your budesonide. Sometimes I forget to add the saline packet, and like you said, when you put it inside your nose it hurts a lot. So when I prepare the mix, I make sure I include everything.[/QUOTE]

    Thanks for taking the time to check I was adding the saline packet. I have used NeilMed packets each time, so not sure why it hurt so much the first few times, but I've been fine with it the last couple of months.
    Diagnosed April 1995

  2. #62
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    Default Re: Coronavirus and GPA

    Quote Originally Posted by vdub View Post


    Oh, BTW, if you haven't looked at the wegs map lately, you might want to do so. It really has a bunch of stick pins in it. Also, be sure and let know of people who need candles.
    https://www.zeemaps.com/map?group=242717
    The link in your message works, but the yellow banner at the top of the page hasn't worked for a long time (at least for me).
    Diagnosed April 1995

  3. #63
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    Default Re: Coronavirus and GPA

    yellow banner at the top of the page
    I'm not sure which one you are talking about. On what page? How do you get to it?
    When you click on it, what url does it take you to or does it just do nothing?
    Wegener's (​GPA )- dx Apr10, Granulomatous Hypophysitis - dx Apr10, Diaphragmatic Paralysis - dx Feb16, Bradycardia - dx Dec16. (my story)
    Forum Member Map -- world map for you to put a stickpin of where you are located....

  4. #64
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    Default Re: Coronavirus and GPA

    Hi Vdub,
    Like Gilders, I see a yellow banner on top of the home page, and every other page, but only when I'm not logged in.
    The banner contains links to FAQ's and makes it possible to register.
    I didn't check the register-button, but the FAQ's-link seems to be working ok on my computer.
    Living with WG/GPA since june 2010...

  5. #65
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    Default Re: Coronavirus and GPA

    Did any of you see the so-called TED-talk of Bill Gates in 2015?
    It was made after the world faced an outbreak of Ebola.

    https://www.ted.com/talks/bill_gates...ce=tedcomshare
    Living with WG/GPA since june 2010...

  6. #66
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    Default Re: Coronavirus and GPA

    Thanks, Christin. I think the problem is on Gilders side, but hard to say. I'm glad its working for you. What browser are each of you using and do you have an ad blocker or have you turned off pop ups. Actually, now that I think about it, people must be finding the map, because it has received so many new hits.

    Maybe some others can tell us if they have the same problem or verify that it does work, but we should probably make a new thread. I don't want to hijack this thread -- it should stay on topic about COVID-19. If anyone answers to the map yellow banner problem, how about starting a new thread? But its not a huge issue either way, so no worries.... Stay healthy everyone! :-)
    Wegener's (​GPA )- dx Apr10, Granulomatous Hypophysitis - dx Apr10, Diaphragmatic Paralysis - dx Feb16, Bradycardia - dx Dec16. (my story)
    Forum Member Map -- world map for you to put a stickpin of where you are located....

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  8. #67
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    Default Re: Coronavirus and GPA

    I guess the World Health Org should have listened to Bill. I have always felt that the WHO did little good for the world and wasn't more than a puppet organization. It really is a world issue and not one than can be or should be solved by one country. However, the US can and I hope do open their eyes a bit and start processes to help with future pandemics. Imagine if this had been biological warfare? We are totally unprepared. I wonder if South Korea did so amazingly well because they were afraid of N. Korea using biological warfare and were prepared for such an event?
    Wegener's (​GPA )- dx Apr10, Granulomatous Hypophysitis - dx Apr10, Diaphragmatic Paralysis - dx Feb16, Bradycardia - dx Dec16. (my story)
    Forum Member Map -- world map for you to put a stickpin of where you are located....

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  10. #68
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    Default Re: Coronavirus and GPA

    South-Korea, as well as Taiwan seem to have learned from the SARS-outbreak in 2002 and 2003. That is what several news-articles are stating.
    In our country a professor at the Univeristy of Leiden said: 'We could have had medication against corona-virusses already, if we hadn't fallen asleep after SARS.
    Living with WG/GPA since june 2010...

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  12. #69
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    Default Re: Coronavirus and GPA

    I just read that both countries are experiencing a rebound in number of cases from people returning or visiting their countries again. Still low numbers but a disturbing trend since there are big fears about what happens when the shut downs and physical distancing end.
    Knowledge is power! Wisdom is using it to make good decisions!

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  14. #70
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    Default Re: Coronavirus and GPA

    It took 12 months to get a SARS vaccine.

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