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Thread: Coronavirus and GPA

  1. #201
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    Default Re: Coronavirus and GPA

    @John S

    I’m just behind you. We get our second doses of Pfizer on 2/23. OSU has used MyChart to notify people of their eligibility for vaccination and to schedule appointments. It’s worked very well for us.

    I’m pointing at March 9 to start toward in-store grocery shopping. I have a rtx infusion on 3/22. Once I’m past that, a cautious resumption of family visits will happen. Thank God for Facetime as we would not have seen our grandkids since late December...
    Pete
    dx 1/11

    "Every day is a good day. Some are better than others." - unknown

    "Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD

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  3. #202
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    Default Re: Coronavirus and GPA

    John,
    Sounds exactly like the way we have been living. It is frustrating to watch on the IPad as the shoppers are putting things into your cart. But my husband keeps telling me it is better to be frustrated than to get COVID. I wonder how many people with compromised immune systems are being as careful as we are. We get our second shot next week but will continue this lifestyle until more people are vaccinated, and we see a significant drop in hospitalizations and deaths.
    We really used to make a date event out of going to Costco, but after I heard that 145 of their employees came down with COVID we will put that on the back burner. One thing I have learned from this are some places to order food from all over the country. A place called Brooklybakery ships and they have the best black & white cookies, World Market ships spices, jams and all kinds of things, Fabko out of NJ ships Eastern European food, Italian I make myself. I found an Amish place that ships pies and /or the ingredients to make your own- haven’t tried them yet.
    Your wife is probably right, better to be safe than sorry.

  4. #203
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    Default Re: Coronavirus and GPA

    Quote Originally Posted by Masha View Post
    John,
    Sounds exactly like the way we have been living. It is frustrating to watch on the IPad as the shoppers are putting things into your cart. But my husband keeps telling me it is better to be frustrated than to get COVID. I wonder how many people with compromised immune systems are being as careful as we are. We get our second shot next week but will continue this lifestyle until more people are vaccinated, and we see a significant drop in hospitalizations and deaths.
    We really used to make a date event out of going to Costco, but after I heard that 145 of their employees came down with COVID we will put that on the back burner. One thing I have learned from this are some places to order food from all over the country. A place called Brooklybakery ships and they have the best black & white cookies, World Market ships spices, jams and all kinds of things, Fabko out of NJ ships Eastern European food, Italian I make myself. I found an Amish place that ships pies and /or the ingredients to make your own- haven’t tried them yet.
    Your wife is probably right, better to be safe than sorry.
    try Garrett’s inChicago for popcorn. The Garrett’s Mix is addictive.

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  6. #204
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    Default Re: Coronavirus and GPA

    Having a compromised immune system makes the efficacy of the Covid-19 vaccination a guessing game. My infection specialist estimates we might have less protection than the 90-95% rate they found in their studies but hopefully we will have some protection and probably more than we get from our average flu shot. He advised me to wait a couple weeks after second shot before taking on any new risk like going to a store. He believes that even if I get infected with Covid-19 that my chances of dying or needing ICU care will be very low. Earlier studies indicated only up to 95 % protection so even with healthy people with good immune systems 5% still got infected and us immune compromised people will most likely have a lower protection rate. So I plan to keep wearing a mask and doing as much safe social distance as I can even after I feel like taking the risk of shopping in a store. When the infection rate becomes very low in my area I might start eating out again. Of course the new virus mutations and studies on rates of re-infection can changes things a great deal as we learn more.

    We get our groceries delivered to out building and give our staff a list of items we want and they order them for us. I would usually get one or two wrong items this way since it was not specific enough. After the store started a web page where I can order off their sales brochure or search inventory in the store I have done much better in my shopping but some times they are still are out of stock for item I wanted especially for fresh baked goods since they are often sold out. And mistakes can still happen but they usually fix them as soon as they catch it.
    Last edited by drz; 02-14-2021 at 06:41 AM.
    Knowledge is power! Wisdom is using it to make good decisions!

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  8. #205
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    Default Re: Coronavirus and GPA

    Quote Originally Posted by drz View Post
    Having a compromised immune system makes the efficacy of the Covid-19 vaccination a guessing game.


    When the infection rate becomes very low in my area I might start eating out again. Of course the new virus mutations and studies on rates of re-infection can changes things a great deal as we learn more.
    I haven't been vaccinated yet, but I totally agree with your strategy.
    As you already said, the effects of the Covid-vaccinations are not totally predictable for people with compromised immune-system.
    I plan on being carefull, even after being vaccinated. Meanwhile keeping a close eye on new studies about Covid-19...
    Only when the infection-rate is very low I will feel secure enough to go out shopping and dining.

    Last summer my family and I followed the same strategy. When the infection-rate was low enough, and the weather was good, my husband and I took a holiday at the seashore.
    We could dine out and sit at terraces, enjoying the light of the setting sun. Meanwhile keeping as much distance to other guests and waiting staff as required.
    My daughter and her friend went to France, where they had a very good time, although masks were required in all supermarkets and restaurants.
    Living with WG/GPA since june 2010...

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  10. #206
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    Default Re: Coronavirus and GPA

    I got my second vaccination today but had a bit of an allergic reaction so I had to go to the emergency room where they gave me a steroid shot in addition to the two Benadryl and Tylenol I took before going. Now I'll find out if I have any more reaction to the vaccination since people often have more reaction to the second shot than the first.
    Knowledge is power! Wisdom is using it to make good decisions!

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  12. #207
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    Default Re: Coronavirus and GPA

    My neighbor had a strange reaction to her first shot. She was fine, then one week later had enormous swelling and redness from her shoulder to her elbow. She immediately went to her doctor. He looked, left the room to look something up and came back to tell her that the medical professionals are talking about a delayed reaction. He gave her some meds ( I don’t know what) she left and it went away.
    Lesson learned- do not take any chances. Be like drz or my neighbor, seek medical help.
    Thank you, drz, for sharing your experience with us. I am sorry you had to go through that reaction, but it resonates with me that I must react immediately.
    The risk of a negative reaction may not be high, but then again, what were the chances of any of us getting GPA?

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  14. #208
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    Default Re: Coronavirus and GPA

    Hoping you are recovering nicely from this bump in the road drz. I had a reaction to a Hep A shot years ago and it was pretty scary - but got better quickly. I'm hoping the same speedy recovery for you.

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  16. #209
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    Default Re: Coronavirus and GPA

    Ten hours later I have a mild headache and more fatigue but I think this a good sign since it means my suppressed immune system is reacting to the vaccination which increases my chances of getting some protection against Covid-19. The tightness in my throat is much better and the steroid shot has not raised too much havoc with my blood glucose levels so my insulin pump still seems able to handle the increased blood glucose from the steroid injection.
    Knowledge is power! Wisdom is using it to make good decisions!

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  18. #210
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    Default Re: Coronavirus and GPA

    Hi everyone... I haven't been on here forever. I hope everyone is doing well and there has been no Covid incidents. I tried to schedule my vaccine but where I live you have to be at least 65 and I am a few months short of that. Although today I went onto a Rite- Aid site and lied about the year I was born and they let be schedule a vaccine BUT before I hit the enter button there was some fine print about the Moderna vaccine that I took time out to read and by the time I was done I lost my timeslot and everywhere else was booked. I had some concerns about the vaccine because my rhuemy at Cleveland Clinic told me to take it at my own risk, since there hasn't been many studies on it with immune suppressed people, although my kidney dr. said to take it. Anyway there was a 800 # to call and talk to a Moderna "expert" and after telling him about having WG along with COPD and that I am on prednisone, I wanted his opinion. After being on hold for about 5 min. he said I should check with my healthcare provider before getting it !!!! So I don't know what to do. 1 dr. said go for it and the other said at my own risk. I know geting Covid would be worse than the vaccine but I just needed someone else to tell me it would be o.k. So that's where I stand. On the news tonight it did say not to take any tylenol with the vaccine which I take everyday so I was glad to hear that. Any comments wold be appreciated. And I'm glad to be back !!!
    Life isn't about how you survive the storm, but how to dance in the rain !

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