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Thread: Specialist in or near KY

  1. #1
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    Default Specialist in or near KY

    Where is the closest clinic/specialist to Kentucky. I am just beginning this journey and want to be sure to get experienced/knowledgeable care. Thank you

  2. #2
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    Default Re: Specialist in or near KY

    You can check the Vasculitis Foundationís website. Youíre probably going to find s good specialist at Cleveland Clinic (I see Dr Alexandra Villa Forte there) or Nashville.

    Happy hunting!!
    Pete
    dx 1/11

    "Every day is a good day. Some are better than others." - unknown

    "Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD

  3. #3
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    Default Re: Specialist in or near KY

    Thank you Pete. I have looked on the foundation site. Nashville is closer for me But I had not been able to find many post on it. So I felt like Cleveland would probably be best- worth the extra drive. I see a pulmonologist on Thursday and wanted to be prepared with who to request a referral too. Thank you again.

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    Default Re: Specialist in or near KY

    If Cleveland is an option it would be a great choice. Once you have everything figured out (relatively) and are stable you can always look for someone closer to home for more regular care. Then, your close to home person has a big wig at Cleveland who they can always go to for advice if they need to.

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  7. #5
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    Default Re: Specialist in or near KY

    I'm in Kentucky. I also see Dr Villa Forte at Cleveland Clinic. Also seeing a pulmonologist there who has been great! Dr. Thomas Gildea. It's about a 4.5 hour trip for us with stops. What part of Kentucky are you? I'm also recently diagnosed.

  8. #6
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    Default Re: Specialist in or near KY

    I am in the Lexington area. My ENT said today that he would begin a referral to CC and Dr Villa Forte for me. Our drive will probably be much longer but that's OK.

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  10. #7
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    Default Re: Specialist in or near KY

    Yes, you would be a bit farther. I'm in NE Ky-Ashland. I definitely think it's worth the trip, but you might have more options in Lexington than I do here. We stay at the Tru by Hilton Cleveland Midtown. It's usually pretty cheap and it's a very easy drive to the Clinic.

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    Default Re: Specialist in or near KY

    I have not been able to find anyone in Lexington or Louisville. So I felt better asking for a referral to Cleveland after reading here that so many of you recommend it. I want to see someone with knowledge and experience with Wegeners. Hubby and I are both retired so we do not have to miss work to travel. Thank you for the recommendation of somewhere to stay. I am waiting to hear back about the referral. Does it usually take a long time to get an appointment?

  12. #9
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    Default Re: Specialist in or near KY

    It didn't for me in the fall. They actually offered me an appointment within a week, if I'm not mistaken. My drs office messed up the referral, so I ended up getting online and chatting with a representative and scheduled my own appointment. She was very thorough. I spent about an hour and half with her that first visit.

  13. #10
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    Default Re: Specialist in or near KY

    I spoke with CC on Friday They do have my referral from the ENT but I have not heard back on schedulng appointment. Things ae moving in the right direction though

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