Kim,
I am so sorry to hear everything you have gone through. You must have been just miserable. You did all of us a great service by sharing your journey. If there is any consolation, know that someday, somewhere, your words regarding a necessary biopsy will reverberate in our ears. How easy it was for the doctors to assume it was Wegeners. I once had a law professor who said when you assume, you are making an ASS out of U and ME.
You have a beautiful attitude. My prayers are with you.
Masha