Hi Everyone,
I'm so glad to find this group!! After going through last winter wondering what I was allergic to with ongoing sniffles, a right swollen hand, and excruciating joint pain all over, I called an ambulance to go to the hospital ER late May with the arrival of red spots all over my lower legs and feet. It was then that I was finally diagnosed! My sinuses were infected, nose inflammation, joint pain, and kidneys inflamed. I was on Cytoxen for several months along with prednisone, my hemoglobin and energy continued to fall and this didn't settle the inflammation, going by urine tests, CRP levels, hgb. I then took IV Rotuxin twice which settled things down and put this into remission. However, now that I am completely off the prednisone, I feel pain in my joints again. I have an appointment with my doctor in a few weeks. This makes me question if I'm truly in remission. I've been taking these "successes" all in strides, dealing with this day by day, and trying to come to grips with what this disease actually means to me as far as quality of life. I want to be in remission, but part of me is hoping there is another treatment I'm going to get to work better because of painful joints. This is how it all started concurrently with the rhinitis, which got progressively worse that I needed help to stand and to get out of bed, or to get pain pills from the bottle to relieve pain. I'm not currently taking anything. My specialist was going to put me on methotrexate but we're waiting insurance approval for every 6 month rituxan intravenous. I am 52, had no signs of arthritis prior to this, and athletic. Is this me now? Sore painful joints to contend with?
Thanks folks!

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