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Re: In process of being diagnosed
Originally Posted by
Aneinu
I have never heard or researched limited gpa, and it sounds like Alysia is correct. You either have it or you don't. However, we were introduced to a middle aged man who developed gpa and has routine rtx infusions, but other than the initial episode, he has not experienced any significant symptoms.
Godspeed to all
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Some docs use the "limited GPA" concept when there is no kidneys' involvement. But we all know that WG can be life risking even without kidneys' involvement and that it can spread to more vital organs if it is not treated.
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Re: In process of being diagnosed
Lea- I, like you, considered myself healthy too, what a throw back to watch my life being turned upside down. You are in the right place joining this group. I went back to work in the ER after being off during my biopsies and Retuximab treatments, have had to up my Prednisone just when I thought I could get off it totally, not going to happen at least for awhile yet. Working in the environment that I do, I am at risk for contracting all kinds of illnesses that people come in with. I wear a mask in triage if patient is coughing, has traveled, high fevers etc but I am still at risk. ER is all I know but looking for a different position in the system to keep retirement funds. I am one of those who will have to work until God says I am done here. LOL. I know its tough trying to figure out this GPA, I am still learning. Good luck, keep good thoughts, a positive attitude, be it hard at times, makes a world of difference. Sherry
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Re: In process of being diagnosed
Pete -
Army?? my husband gets his hearing aids for free from the VA! He wasn't in the service very long, but didn't even know about VA benefits until 4 years ago. Time to check it out,
jan
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Re: In process of being diagnosed
Hi Lea,
Welcome to the forum! I too had been diagnosed as “limited GPA”, this was 23 years ago. The thought being that no major organs are affected. I even had one Dr say that all the tests that came back positive to GPA were false positives because I was not in renal failure & he did not believe I should be treated. Luckily for me he wasn’t actually my Dr. Alyssa is correct-they no longer use this terminology because things can change so quickly.
As for working in the school-I work in health care and am around sick people all the time. I can tell you I have only gotten sick from a patient once. I use extreme hand washing techniques and am very particular about my personal space. I will say though, I can pretty much guarantee whenever my 5 year old gets sick.. I will get it much worse than her. So I also try & keep her as healthy as possible.
Natty
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Re: In process of being diagnosed
Thank you natty and I am glad to hear this. With students, even when I did not have GPA, I was always very careful. I guess I am being extra careful now.
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