OK, as I have been posting, I have been on a very slow reduction of prednisone. Over the summer I went from 10 to 8. But at 8 my throat, sinus and teeth all went to hell in a hand bag. I had to up 20, 15, 10.
Next week I will be getting my maintenance infusion cocktail of RTX and very high dose steroids. My thought is the day after, while I still have all those steroids in me, I don’t go back to 10 prednisone, but return to 8. I know all I can do is try, but I welcome your thoughts and input.
I am now on 2X yearly 1000 RTX. Other than this latest setback I have been doing pretty well.
It is a downer when you seem to be in control, and you get your socks knocked off.
As an off topic, I was just reading about the late movie star Ava Gardner. The article said when she died in 1990, she had an unknown autoimmune disease. Really makes you wonder just how vast and undiagnosed this is.
Be well,
Masha