Quote Originally Posted by gilders View Post
With 4xRTX infusions every 6 months you may not need an extra maintenance drug?
But there is one you didn't mention that you'd tried, Mycophenolate. That may be an option.
I doubt they'll put you back on Aza, but I was on it for the majority of about 20years. Dr's believed it was the cause of my immature, odd shaped red blood cells, which reverted to normal after I came of Aza. It also stopped being effective after 20 years. Overall I think it was a good drug for me for the first 19 years.
I had the immature red blood cells from one drug I tried to take instead of Bactrim so I ended up getting Pentamadine nebulizer treatment every month instead. I have been on AZA almost nine years so who knows what side effects might turn up from it or any of the many drugs i take now but without all the various chemicals I figure i would be long gone years ago so I just enjoy the bonus years and hope they last a long time for me.