Hi everyone. My 21 year old daughter was just diagnosed with Wegeners.
She has a perforated septum which is what started the trips to the doctor. She has constant joint pain and fatigue plus nose bleeds that come and go. Also they found some small nodules in her lungs (very small per the doc). All her blood work & urine tests came back within normal range so they didn't do any imaging of her kidneys. The Rheumy said she would consider her disease mild and wants to start her on methotrexate. She said she could also add prednisone but said is not doing that right away. Has anyone ever heard of using methotrexate without prednisone? All my reading says that it is the standard go to regimen for non life threatening situations. I trust the doc. She is a vasculitis specialist at Northwestern in Chicago. It took us (9) months just to get an appt. and she was very thorough and seems very knowledgeable. Would love to hear some input on others experience. I am so scared for her and am trying to remain positive. So many people have some scary stories and I know that she is lucky that is seems to be caught early. Just want to make sure we make the best choices for treatment. Thanks all.