Our symptoms are very much alike, I started with what I and my NP thought was a sinus infection, a round of Zithromax seemed to help for the first couple of days, but I knew it was more than just sinuses. My right side of my face started going numb, swelling and redness to my rt eye, I contacted my NP requesting a cat scan, no response, a few more days went by and my joints started hurting, it was difficult to walk due to the pain. I contacted my NP again asking for pain medication, I specifically asked for a non-narcotic-the only response I rec'd was that she was referring me to neurologist (??) because of the numbness in my face and the swelling continued to get worse for 2 more weeks before I could get into neuro-he ordered a stat MRI and referred me to ophthalmology- all the time my symptoms were worsening, long story short- I had a mass in my rt inner orbit that caused the eye to protrude and stretched the optic nerve to the point that I have double vision in rt eye peripherally, I had a mass in my rt lung-needle biopsy. Both the mass in my eye and lung are due to GPA (vasculitis). I had 4 infusions of Retuximab, was off of work for 2 1/2 months on sick leave. I am still on Prednisone but weaning slowly, had a relapse so I had to start back up on the higher dose of Prednisone and in the process of weaning again. Scheduled to have another infusion of Retuximab in December. I am so frustrated with this, I do not have the energy I once had. No one really understands what we are all going through, it is very difficult to explain to others that I really can't look at you if you are standing to the right of me-the mass in my eye was 15mm, now down to 8mm, the vision is still double,they don't know if this will ever come back to single vision, can you imagine how driving is for me? The numbness on the rt side of the face is still there, still having sinus issues. The mass in my lung has shrunk to just a pea size image now. Everyone that comes into contact with us think we look "wonderful" but have no idea what we have to deal with on a daily basis. I am so glad you reached out to this group, they are very supportive and understand more than anyone, what we deal with daily. Sherry