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Thread: Newly diagnosed - ANCA positive, Joints and muscle pains, eye pressure

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    Default Re: Newly diagnosed - ANCA positive, Joints and muscle pains, eye pressure

    Welcome! I had similar symptoms especially with the eye pressure and bottom of feet pain where I could not even walk for a while. Also had lung infiltration's and shortness of breathe, extreme brain fog. Predisone helped me, then RTX and now I am diagnosed since Feb 2019 (sick since 10/18) I am going to have my 2nd dose of RTX at the end of the month. I am in San Diego and on my 3rd doctor. Have appt. at John Hopkins in November for another opinion on treatment
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    Default Re: Newly diagnosed - ANCA positive, Joints and muscle pains, eye pressure

    Quote Originally Posted by tac View Post
    Welcome! I had similar symptoms especially with the eye pressure and bottom of feet pain where I could not even walk for a while. Also had lung infiltration's and shortness of breathe, extreme brain fog. Predisone helped me, then RTX and now I am diagnosed since Feb 2019 (sick since 10/18) I am going to have my 2nd dose of RTX at the end of the month. I am in San Diego and on my 3rd doctor. Have appt. at John Hopkins in November for another opinion on treatment
    .
    @tac - thanks for sharing. We indeed share commonality of onset symptoms and I am worried about what follows. Everyone seem to have different experiences regards to where it flares. Curious - what was the deciding factor when the doctor diagnosed you with GPA with certainty?

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