hi all wow what a last 4 to 6 weeks its been. sorry i have'nt been on much i cant get on the computer much anymore. my wife myself + 4 kids live with my mother in law squished into a 12 square home until our hou se is to be finished being built by august / september. but the last 7 weeks our eldest number 5 moved in with her husband and two girls 3 + 2 which are a major handfull so 11 people in the house is so stressful for me with working full time and the disease and also getting sick again and coming home to the yelling and screaming of kids and at kids by the daughter and s in law it is all catching up with me . i have been dropping hints tfor them to get out and get their own rental but it;s on deaf ears cause they know how good they have it financially.and it's not our house so i cant boot them out which i would love to do because as far as i'm concerned they dont have any compassion or concern for how i feel with my sickness and the wife as well has enough to worry about with our family let alone all their problems as well way. well enough of my whingeing ans bitching last i spoke yo you all i was going for my kidney checkup rhueamy sent me for tests blood and kidney it seems the bloods for the disease are all ok and under control but the kidney tests found the anti inflammatories he had me on to get me moving on my legs better which were 15mg of Mobic daily is stuffing up my kidneys he said we have to stop them immediatly . so i have been of them for three weeks now and my legs are slowly getting worse again. he said there is nothing we can do it's either put up with the bad legs or have the kidneys pack it in. the other thing that has been bothering me is i have been so crook for about 6 weeks now but i saw the rhueamy on the 18/1 and he said all my bloods were good my blood pressure was excellent. i told him there is something wrong so he asked me to book an appointment with ent clinic which i am still waiting for . i saw my local gp and he said my chest was clear but there was something going on and to follow up on the ent app he wanted to put me on antibiotics which i did'nt take the thing that worries me is the rhuem and the hospital are not keeping in touch with my gp all the things he knows about what is going on is what i tell him evey time i see him . i thoughtn maybe a flare but the rhuam said all my results were ok but i have most of my symptoms back again from november till now he has backed off the pred to 37.5g and from the 18/1 down to 30mg i dont know if it;s because he's backing it off so quick or what but from when he dropped it from 50mg thats when my problems started. when i breath it's like burning in my throat all the time i cant breath deep it hurts too much i have whopper headaches nearly every day i have bad sinus with crusting not much bleeding though i get the occasional blurry vision i dont have to do much to be really badly short of breath after drying myself after a shower i am huffing and puffing like i have just run a marathon i have been getting pain around my kidney area not much but niggling my legs are worse and the most worrying part is the fatigue is really bad now i get the nods at workall the time and weekend are the worst i cant get out of bed on a sunday i take my methoextrate on a saturday dinner time and it stuffs me up for days now i feel crook all the time now from all the drugs i get bad hearturn all the time thet put me on the acid blockers which helped with that but i've gone from eating like a horse to not eating regular meals at all cause of feeling crook in the tummy all the time i know i might have to do something about working full time 5 - 6 days half day saturday i am getting there late nearly every day because i just cant get up isleep 7 - 8 hours a night and still wake up like i have'nt slept at all sorry for the whining but i need to vent my frustration thanks for listening all
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