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Re: Newly Diagnosed
Marsha, I guess one of the many questions I have is how do you know you are in remission? I have had a round of Retuximab (weekly doses for 4 weeks) although I do feel a lot better, I am still having issues, my nose continues , I still have double peripheral vision in right eye, constant fatigue, and shortness of breath with exertion. I have a follow up appointments with the rheumatoidologist and pulmonary ( masses from Wegeners ). I have slowly weaned down the prednisone, now taking 15mg daily down from 40 mg until follow up with the Dr.s. With the decreasing doses of prednisone, my joints are starting to ache. Sherry
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