Since his flare in April this year my husband has had increasing difficulty in walking and is now unable to move from bed to chair without 2 helpers, although he has good muscle tone and power in his legs. He is also extremely weary most of the time with occasional confusion and incontinence.
All his WG markers are back to normal and chest X-Ray has cleared. Neurologists can find nothing wrong and the general view is that this may be due to WG damage in brain vessels and we will have to wait and see.
Current treatment is now down to 25mg Pred daily- had 2 Rituximab infusions in early May and there is talk of adding in Myco next week.
Anyone else had any experience of these sort of effects?