My son can not speak for himself as he is sedated. Jack came home from school for the summer not feeling well, that was May 22nd. He was diagnosed with Wegener's less than 2 weeks ago and has been in the ICU for almost 3 weeks. His lung function is very poor and he is being supported by ECMO. He has received 7 plasma exchanges and tomorrow will receive his 3rd round of Ritoxin This is a nightmare.

I am reaching out for support so that when Jack is woken up I can cope with the next stages of our new journey. I've been told this is going to be a very long healing process ... months. Relearning to walk, building up his strength and so much more that i have no idea about. We won't know for sometime the overall damage that has been done to his lungs.

I've come to the realization that life as we knew it is no more.