Hello everyone,
I don’t have WG but my husband does. He was first diagnosed in 2006 after the usual torrid time and, after 2 tears of treatment achieved a drug free remission until April this year. This time the WG was recognised very quickly and he receives his second Rituximab this week.
The first time his lungs, ears and the peripheral nerves in his legs were affected, but this time it is his muscles and balance so he his currently hardly able to walk meaning we have to use a wheelchair when we go out. I remember how long everything took to improve the last time but it seems harder this time although we are both trying to be positive.
Our chest consultant is great and has involved neurology and rheumatology: they are all very positive about things improving but I wonder if anyone else out there has any experience of WG affecting walking in this way-and has any advice for us?
All the best to you all,
Mags