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Thread: Nine years

  1. #1
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    Default Nine years

    Nine years ago today, (4/24/2010), I had a left lung resection, they took 38 grams, for a better biopsy, prior to that I had an unsuccessful needle biospy. I had been sick for a long while, with one thing or another.They were trying to solve the puzzle of what all the cavitated masses were in my lungs. I had a rash, pneumonia, my feet grew, my joints and they were acting up in 2008. I was coughing up piles of mucus and was starting to get really exhausted.I also had jaw pain, joint pain, hearing loss,and high fever kept creeping up. It finally took a friend making me go to Cleveland clinic and get evaluated. They sent for my biospies, took their own scans, bloodwork and a team of docs to analyze the data. They called me at work to set me up with an appointment with to meet my Rheumy. In Sept.2010
    I was dx'd with Wegener's and started my treatment plan. I was ANCA negative, so it was the Scans and the biospies( from a local hospital) that finished that puzzle. I am still here!!💜
    Jana


    Do not fear anything, just do it afraid!
    It does not matter how slowly you go, as long as you do not stop!


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  3. #2
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    Default Re: Nine years

    @Jaha

    Glad you’re still with us and doing better!!
    Pete
    dx 1/11

    "Every day is a good day. Some are better than others." - unknown

    "Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD

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    Default Re: Nine years

    Thanks for sharing your story, and thank you for being with us. Happy Anniversary. How are you doing these days ?
    Alysia
    dx 2008


    Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
    https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
    "You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
    Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.

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    Default Re: Nine years

    Jana, happy anniversary ,we're all happy you're here.
    Biopsies are the most accurate way of diagnosing vasculitis.

    Hoping you're well at the moment and good health continues.
    Diagnosed April 1995

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    Default Re: Nine years

    Happy Survivor'versary my dear

    Such and ordeal, and I'm also glad you are still here
    Keep Smiling
    Michelle


    Live your life in a way that you wouldn't be ashamed to sell the family parrot to the town gossip - WILL ROGERS

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    Default Re: Nine years

    I forgot all about mentioning my anniversary, because it was the same day my Dad died and I was somewhat distracted. 21Apr2010 was the day they removed and biopsied my pituitary. Things changed a bit after that....
    Wegener's (​GPA )- dx Apr10, Granulomatous Hypophysitis - dx Apr10, Diaphragmatic Paralysis - dx Feb16, Bradycardia - dx Dec16. (my story)
    Forum Member Map -- world map for you to put a stickpin of where you are located....

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    Default Re: Nine years

    April 2010 I was trying to wake up from intubation and learn to try breath again on my own. Must have been a bad month for Wegs for at least three of us so far on this thread.
    Last edited by drz; 07-10-2019 at 01:16 AM.
    Knowledge is power! Wisdom is using it to make good decisions!

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