Mds!!

**Dorothea** · 03-15-2019, 04:00 PM

I'm a member of this group, I was diagnosed with Wegeners in 2013.
I was just diagnosed yesterday with MDS(Myelodysplastic Syndromes) it's a disease of the bone marrow. I honestly believe I ended up with this because of the Imuran that I've been on for almost three years!!! Has anyone gone through this, just curious!!
Thanks in advance!

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**Keith** · 03-16-2019, 12:53 PM

I’ve not heard of that but I’m less than 2 years in. Watching though as I’ve been on imuran for maybe 20 months. 100 mg now as I’m almost off of prednisone.

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**Dorothea** · 03-16-2019, 12:59 PM

Originally Posted by Keith

I’ve not heard of that but I’m less than 2 years in. Watching though as I’ve been on imuran for maybe 20 months. 100 mg now as I’m almost off of prednisone.

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I've been taking 150mgs.

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**drz** · 03-16-2019, 01:05 PM

Originally Posted by Dorothea

I've been taking 150mgs.

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I have taken 175-200 mg for 8 + years.

**Keith** · 03-16-2019, 02:48 PM

Originally Posted by drz

I have taken 175-200 mg for 8 + years.

Thanks

My doc had told me not to worry, they had many others on higher doses with no issues but I didn’t have a feeling of the magnitude.

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**Dorothea** · 03-16-2019, 03:44 PM

Originally Posted by Keith

Thanks

My doc had told me not to worry, they had many others on higher doses with no issues but I didn’t have a feeling of the magnitude.

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Have you had a flares?

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