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Thread: Mds!!

  1. #1
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    Default Mds!!

    I'm a member of this group, I was diagnosed with Wegeners in 2013.
    I was just diagnosed yesterday with MDS(Myelodysplastic Syndromes) it's a disease of the bone marrow. I honestly believe I ended up with this because of the Imuran that I've been on for almost three years!!! Has anyone gone through this, just curious!!
    Thanks in advance!

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    Default Re: Mds!!

    Iíve not heard of that but Iím less than 2 years in. Watching though as Iíve been on imuran for maybe 20 months. 100 mg now as Iím almost off of prednisone.



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    Default Re: Mds!!

    Quote Originally Posted by Keith View Post
    Iíve not heard of that but Iím less than 2 years in. Watching though as Iíve been on imuran for maybe 20 months. 100 mg now as Iím almost off of prednisone.



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    I've been taking 150mgs.

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    Default Re: Mds!!

    Quote Originally Posted by Dorothea View Post
    I've been taking 150mgs.

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    I have taken 175-200 mg for 8 + years.
    Knowledge is power! Wisdom is using it to make good decisions!

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    Default Re: Mds!!

    Quote Originally Posted by drz View Post
    I have taken 175-200 mg for 8 + years.
    Thanks

    My doc had told me not to worry, they had many others on higher doses with no issues but I didnít have a feeling of the magnitude.


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  8. #6
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    Default Re: Mds!!

    Quote Originally Posted by Keith View Post
    Thanks

    My doc had told me not to worry, they had many others on higher doses with no issues but I didnít have a feeling of the magnitude.


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    Have you had a flares?

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  10. #7
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    Default Re: Mds!!

    Quote Originally Posted by Dorothea View Post
    Have you had a flares?

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    Thankfully no. How about you?




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  11. #8
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    Default Re: Mds!!

    Quote Originally Posted by Keith View Post
    Thankfully no. How about you?




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    Yes, I was on dialysis for 2 months, my kidneys are only at 25%. That was three years ago. That's why I'm on Imuran. I'm afraid now that I have MDS it might set me up for another flare!

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