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Thread: Nice NYTimes article on chronic disease

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    Default Nice NYTimes article on chronic disease

    Read this today and it resonated with me -- as I have only been part of the Wegs community for less than a year. Thought I would pass it along. "Five Things I Wish I'd Known Before My Chronic Illness" By Tessa Miller

    https://www.nytimes.com/2019/02/18/s...sease-ibd.html

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    Default Re: Nice NYTimes article on chronic disease

    I and anyone here who reads this article will surely be nodding in agreement almost constantly as they read

    Thanks for posting and welcome to the forums!
    Forum Administrator
    Diagnosed March 2003.
    Currently but not permanetly residing in Canberra, Australia.

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    Default Re: Nice NYTimes article on chronic disease

    Thanks for posting that. Definitely resonates with me as well.

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    Default Re: Nice NYTimes article on chronic disease

    Indeed, everyone does offer advice -- yoga, marijuana, walking (oh, that's painful), and even "stop taking all those meds". Excuse me? Stop taking all those meds? Sheeezee.... :-)
    Wegener's (​GPA )- dx Apr10, Granulomatous Hypophysitis - dx Apr10, Diaphragmatic Paralysis - dx Feb16, Bradycardia - dx Dec16. (my story)
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    Bing505z is offline Banned for being a douchebag
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    Default Re: Nice NYTimes article on chronic disease

    Good read ..... not bad coming from left wing nut jobs

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    Default Re: Nice NYTimes article on chronic disease

    You shouldn’t be on multiple courses of steroids, even two courses
    Saw the above on your tag line. I'm on steroids every day. They will probably be the major cause of my demise. Not to mention, I gain weight constantly.
    Wegener's (​GPA )- dx Apr10, Granulomatous Hypophysitis - dx Apr10, Diaphragmatic Paralysis - dx Feb16, Bradycardia - dx Dec16. (my story)
    Forum Member Map -- world map for you to put a stickpin of where you are located....

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    Default Re: Nice NYTimes article on chronic disease

    Quote Originally Posted by Bing505z View Post
    Good read ..... not bad coming from left wing nut jobs
    I am not a moderator of this group, but I have to say something: This is a helpful forum for people to share their experiences with a chronic illness. Definitely not a platform for political commentary. Please keep that crap to yourself, regardless of what your views are.

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    Default Re: Nice NYTimes article on chronic disease

    In regards to Prednisone - I was on 2.5 mg for 2 months. I started to wean further (with rhuemy's agreement) by mixing in 2 mg every other day or so (it was somewhat mathematical). Anyway ... after 1 month of that process, I realized today that what I thought were 2 mg pills were actually 1 mg pills ... This may explain why I didn't feel the best some days. So fight the tendency to be complacent like I did when things are going well.

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    Default Re: Nice NYTimes article on chronic disease

    I could give a crap what you have to say, I stated a fact, wasn't anything political about it.
    Let's play nice guys! It has already been addressed, Tom, but thanks for chiming in. Let's drop this now and continue on.
    Wegener's (​GPA )- dx Apr10, Granulomatous Hypophysitis - dx Apr10, Diaphragmatic Paralysis - dx Feb16, Bradycardia - dx Dec16. (my story)
    Forum Member Map -- world map for you to put a stickpin of where you are located....

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