I was diagnosed with Wegener's in December, I went to my family doctor with a stuffy nose in early October. My nose had been increasingly stuffy and crusty since July or August and would bleed a little bit once in a while. He put me on antibiotics with a 16 day course of prednisone and I got better until the pred wore off, so went back only now my right ear was plugged up too and my left eye was red and irritated. He put me on Allegra and another 16 days of prednisone. I called after a week because my eye was getting worse so he added amoxclav to the mix. It didn't help so after a week or so I went in to see him again, he put me on some eye drops and ordered a CT scan of my sinuses and nose and a chest scan, told me to see my eye doctor who put me on durazol drops. That was the Saturday before Thanksgiving. I made it through the week but over the holiday my eye got worse. I missed work on the following Monday, went to the optometrist who took a look and sent me to an opthamologist. He had me putting the durazol drops in every hour for two day but it didn't help so he sent me to a specialist in Wichita who put me on doxycycline, reduced the durazol to 6 times a day and ordered a bunch of labs and refered me to a rheumatologist because he suspected an autoimmune condition. The eye got better and he released me to return to work on Jan. 3rd. I got the scans on the 12th of Dec and saw the rheumatologist on the 18th. She was able to diagnose Wegeners based on the scans, symptoms and the blood work. My labs also showed antibodies for TB so I'm on medication for that and will start Rituxan infustions on the first of March. I've been tapering prednisone since the 18th, started at 45mg/day dropping 5 mg/day every week since. Seems like life is taking an interesting turn for me. I'm welcome to any advice or suggestions you may have.

Ken