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Thread: Links to Wegener's Granulomatosis Resources

  1. #21
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    Default Wegener's granulomatosis is form of ANCA Vasculitis--link with info>


  2. #22
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    Here's a cool link that Leah posted on Facebook, so I'm stealing it for my blog and also for here. Very interesting representation of what's going on inside. Check out the slideshow AND the animation.

    AAV Info || || Home

  3. #23
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    Another good fact sheet about Wegener's - Wegener's Granulomatosis
    Jack

  4. #24
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    I'm looking at setting up a UK based site, after my partner (on here as lili) found out about the cluster of cases here in South Wales. I've only just started looking at links, but have found these so far:

    St Thomas' Wegener's Trust

    Wegener's Granulomatosis Support UK ? Wall | Facebook

    Wegeners-UK

    The last link is my site, which is pretty bare at the moment, so I'll be asking for help with it soon

    Obviously, I don't want to tread on any toes, but I think that localised information will be very helpful, especially for those of us who like to meet face to face, or know that there's someone else in the same situation nearby

  5. #25
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    That sounds like a good idea Tippon. I always enjoy meeting new Weggies.
    Phil Berggren, dx 2003

  6. #26
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    This is an excellent website for figuring out what your lab tests mean.
    Lab Tests Online: Welcome!

  7. #27
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    Vasculitis-Education : Vasculitis Education

    This is a great "news" site started by a gentleman named Jim, that suffers from Central Nervous System Vasculitis. He posts news sites and medical posts on a daily basis, as they pertain to Vasculitis. Some are technical, others are anecdotal. Sign up, and you receive a compilation every day.

  8. #28
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    This reminds me I have a dentist appointment in the new year.
    Phil Berggren, dx 2003

  9. #29
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    Quote Originally Posted by pberggren1 View Post
    This reminds me I have a dentist appointment in the new year.
    you are funny this week phil
    lightning crashes
    leigh

  10. #30
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    Quote Originally Posted by delorisdoe View Post
    you are funny this week phil
    Wasn't I funny last week?
    Phil Berggren, dx 2003

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