User Tag List

Likes Likes:  0
Page 2 of 4 FirstFirst 1234 LastLast
Results 11 to 20 of 36

Thread: Links to Wegener's Granulomatosis Resources

  1. #11
    Join Date
    Jul 2010
    Location
    Fredericksburg, Va
    Posts
    40
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Smile An article my hubby came across awhile ago.

    Weggies UNITE!!

  2. #12
    Join Date
    Aug 2010
    Location
    Essex, UK
    Posts
    968
    Post Thanks / Like
    Mentioned
    2 Post(s)
    Tagged
    0 Thread(s)

    Default

    Has anyone read the books i can see on Amazon called Eye on the Prize: Fighting past Wegeners Granulomatosis and There must be a reason: My daughters battle with Wegeners granulomatosis...cos there arnt any reviews and are quite expensive...especially when my mum got her arthritis books very cheaply.

  3. #13
    Join Date
    Jun 2008
    Location
    Southwestern Pa. U.S.A.
    Posts
    212
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    Quote Originally Posted by freakyschizogirl View Post
    Has anyone read the books i can see on Amazon called Eye on the Prize: Fighting past Wegeners Granulomatosis and There must be a reason: My daughters battle with Wegeners granulomatosis...cos there arnt any reviews and are quite expensive...especially when my mum got her arthritis books very cheaply.
    I have the EYE on the Prize book written by Candace Ross. She is from my area and was actually one of the first people to contact me when I was diagnosed. Her journey is interesting because of her determination and strength she was able to over come many obstacles that most people would not. She fought and won many battles. She is a wonderful lady.
    There is also supposed to be a network library but I can't get into it. Maybe someone else can have better luck. I guess it was started because of the limited info out there and books, videos, whatever are donated and you can "rent" for the price of postage. the link is: pansupportnetwork.org/html/learn/pan.library/library.html

  4. #14
    Join Date
    Aug 2010
    Location
    Essex, UK
    Posts
    968
    Post Thanks / Like
    Mentioned
    2 Post(s)
    Tagged
    0 Thread(s)

    Default

    that link isnt working for me...so i'll take that as a reccomendation then? lol.

  5. #15
    Join Date
    Jun 2008
    Location
    Southwestern Pa. U.S.A.
    Posts
    212
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    I dunno....I think that link might have been from a few years ago. Maybe it didn't do well and is no longer around.
    I did however enjoy reading Eye on the Prize

  6. #16
    Join Date
    Aug 2010
    Location
    Essex, UK
    Posts
    968
    Post Thanks / Like
    Mentioned
    2 Post(s)
    Tagged
    0 Thread(s)

    Default

    well i've just ordered them both so i'll let ya know how i get on!

  7. #17
    Join Date
    Jul 2010
    Location
    see map location
    Posts
    4,117
    Post Thanks / Like
    Mentioned
    7 Post(s)
    Tagged
    0 Thread(s)

    Default

    Necrotizing vasculitis is a rare condition that involves inflammation of the blood vessel walls.

    Causes

    Necrotizing vasculitis is common with:


    It is very rare in children.
    The cause of the inflammation is unknown. It is likely related to autoimmune factors. The wall of the blood vessel may scar and thicken, or die (become necrotic). The blood vessel may close, interrupting blood flow to the tissues it supplies. The lack of blood flow will cause the tissues to die.
    Necrotizing vasculitis may affect any blood vessel in the body. Therefore, it can cause problems with the skin or any of the body's organs.
    Symptoms

    Fever, chills, fatigue, or weight loss may be the only symptoms at first. However, symptoms may be in almost any part of the body.
    Skin:

    • Abnormal skin tissue (lesions)
      • Papules (small, solid, and raised lesions)
      • Red or purple colored
      • Located on the legs, hands, or other parts of the body

    • Fingers that change color (blue fingers or toes)
    • Tissue death due to lack of oxygen
      • Pain or tenderness in the area
      • Skin redness
      • Sores (ulcers) that do not heal


    Muscles and joints:


    Brain and nervous system:

    • Pain, numbness, tingling in an arm, leg, or other body area
    • Weakness of an arm, leg, or other body area
    • Pupils that are different sizes
    • Eyelid drooping
    • Swallowing difficulty
    • Speech impairment
    • Movement difficulty

    Other symptoms include:


    Exams and Tests

    The doctor will perform a physical exam. A nervous system (neurological) examination may show signs of nerve damage.
    Tests that may be done include:


    Treatment

    Corticosteroids (given in low doses) or other drugs that suppress the immune system may reduce inflammation of the blood vessels.
    See also:


    Outlook (Prognosis)

    The outcome depends on the location of the vasculitis and the severity of tissue damage.
    Possible Complications


    • Permanent damage to the structure or function of the affected area
    • Secondary infections of necrotic tissues

    When to Contact a Medical Professional

    Call your health care provider if you have symptoms of necrotizing vasculitis.
    Emergency symptoms include:

    • Changes in pupil size
    • Loss of function of an arm, leg, or other body part
    • Speech problems
    • Swallowing difficulty
    • Weakness

    Prevention

    There is no known way to prevent this disorder.
    Alternative Names

    Vasculitis - necrotizing
    References

    Cassidy JT. Systemic lupus erythematosus, juvenile dermatomyositis, scleroderma, and vasculitis. In: Firestein GS, Budd RC, Harris Jr. ED, McInnes IB, Ruddy S,eds. Kelley's Textbook of Rheumatology. 8th. Philadelphia, Pa: W. B. Saunders Company; 2008: chap 98.
    Update Date: 5/31/2009

    Updated by: Mark James Borigini, MD, Rheumatologist in the Washington, DC Metro area. Review provided by VeriMed Healthcare Network. Also reviewed by David Zieve, MD, MHA, Medical Director, A.D.A.M., Inc

  8. #18
    Join Date
    Jul 2010
    Location
    see map location
    Posts
    4,117
    Post Thanks / Like
    Mentioned
    7 Post(s)
    Tagged
    0 Thread(s)

    Default

    A reference that will help you understand your lab tests and offer email responses to questions about your lab results.

    Lab Tests Online: Welcome!

  9. #19
    Join Date
    Apr 2009
    Location
    South Carolina
    Posts
    4,273
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    Thanks Drz for the information.

  10. #20
    Join Date
    Jul 2010
    Location
    see map location
    Posts
    4,117
    Post Thanks / Like
    Mentioned
    7 Post(s)
    Tagged
    0 Thread(s)

    Default

    Events listed on Vasculitis web site: Should we post these here on an on going basis?

    Upcoming Events | Vasculitis Foundation

Page 2 of 4 FirstFirst 1234 LastLast

Bookmarks

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •