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Thread: Curious...how many members work with this illness

  1. #11
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    Default Re: Curious...how many members work with this illness

    I totally agree with the fact that it is different for everyone as well as the severity of the overall symptoms. Myself I returned towork after a short stay in the hospital with a pulmonary hemorrhage. I had a desk job but it was stressful and very combative so I ended up having to be of for 6 weeks again about 5 months later. I went in for a follow up appointment with my specialist and she took one look at me and refused to allow me to work until I had rested.

    Since that time, I fully return to the same position, which had me travelling regularly, overseeing a large department, as well as developing programs for a major health insurance provider. Unfortunately, the doctors are right when they say stressand lack of self-care will cause major complications! I managed to do thiscrazy work schedule for an additional 7 years before I had a relapse two years ago. It forced me to change positions into something more flexible as well as let go of that crazy schedule. I do currently continue to work full time within the same health insurer, but I am more aware of the stress I take on and havelimited my travel significantly which has helped.

    I am in my early 40?s and have a family to support and a long time to support myself, upon diagnoses I too feared I would not be able to provide for myfamily but actually it has made me be true to myself and build a better qualityof life. Not only do I only work my said ?work hours? but I have time forfamily and friends which prior to WG I did not. Took me a long time and struggles to accept my new normal and be grateful for what it has given me.
    Last edited by cutehair2013; 10-31-2018 at 05:00 AM.

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  3. #12
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    Default Re: Curious...how many members work with this illness

    In most of the pediatric cases I know of, the child is able to go back to school and maintain regular children's activities, although they very very rarely re-achieve the level of athletic prowess so many of them had before. Some kids do need to be homeschooled due to immune-suppression & germy conditions in regular school. A couple of kids I know who survived diagnosis were not able to go away to college or participate in a regular college class schedule, but most do.

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  5. #13
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    Default Re: Curious...how many members work with this illness

    I was diagnosed when I was 17. I was at the end of my 12th year in high school. I continued onto university. I work in the healthcare industry. During this time I had several relapses.I was able to work full time till about a year and a half ago. I went part time due to another relapse and started Rituxin. I am now feeling much better & am searching for full time again.
    I think everyone is different.
    Natty


    Sent from my iPhone using Tapatalk

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