Good afternoon my friends,
I was wondering if any of you have had any experience with this. I finally tapered off all prednisone. I timed it between my first round of Rituxin & my second since I knew they would give me a large dose of steroids. After my first round of Rituxin (this 6 months I mean not ever), I started having terrible back pain around my kidneys that kind of wraps around my belly. I tried everything to get rid of it. I notified my rheumatologist, she said that Rituxin can cause back spasms (who knew?). After a huge dose of steroids again at my second infusion the back pain went away & I jumped for joy. Then it came back! I was at the ER all night where they treated me like a drug seeker! I asked them to test my cortisol level & the ER said they
Don?t do that. My rheumatologist says they are withholding Rituxin until this is figured out. The ER said my kidney function was fine. I don?t know what to do! I am following up with my PCP tomorrow & in the meantime I?m miserable!! Advice?


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