Hi. My name is Marlene and I have found a lot of comfort reading everyone’s story on this forum.
i was originally diagnosed with GCA in July of 2017. I was on high doses of prednisone and later on, methotrexate was added. Whenever my dr tried to wean me off prednisone, I would flare. My original rheumatologist just seemed disappointed in my lack of getting better.
i went for a 2nd opinion @ Jefferson Hospital Rheumatology in Philadelphia. After one visit she felt I may have GPA. Blood tests ordered and yes, I have a confirmed diagnosis. That both made me happy and sad. Finally...a true diagnosis. I am having my second infusion of Rutixumab tomorrow. Any advice on going through the next few doses of Ritixumab would be appreciated

Marlene