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Thread: Newly diagnosed

  1. #11
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    Default Re: Newly diagnosed

    Richard,

    thank you you very much for mentioning about keeping up with eye care.
    last time I was atete dr my eye pressures were up and that was before going up on prednisone dose. My vision is fuzzy since last Ritixumab dose.
    Marlene

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  3. #12
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    Default Re: Newly diagnosed

    Quote Originally Posted by Marley3562 View Post
    Richard,

    thank you you very much for mentioning about keeping up with eye care.
    last time I was atete dr my eye pressures were up and that was before going up on prednisone dose. My vision is fuzzy since last Ritixumab dose.
    Marlene
    No Problem. My eye doctor wants to see me 4 times a year, at a minimum. Don't fool around with the eyes.

    A good article on GPA and the eyes:

    https://www.reviewofoptometry.com/ar...granulomatosis
    Last edited by richard052018; 07-30-2018 at 10:00 PM.

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  5. #13
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    Default Re: Newly diagnosed

    Quote Originally Posted by richard052018 View Post
    No Problem. My eye doctor wants to see me 4 times a year, at a minimum. Don't fool around with the eyes.

    A good article on GPA and the eyes:

    https://www.reviewofoptometry.com/ar...granulomatosis
    I don't think it is as rare as the article suggests. But article confirms that Wegs can affect almost any part of your body. Some people have lost vsion from it. And hearing. And other things.
    Knowledge is power! Wisdom is using it to make good decisions!

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  7. #14
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    Default Re: Newly diagnosed

    Hi...I have had my eye dr appointment and now have a new question.
    pressure in both eyes are slightly elevated, but maintained from previous appointment.
    my eye dr, did discover an “eye freckle”that wasn’t there 3 months ago. She said the freckle is associated with retina and that sometimes it is seen in MS patients.
    Anyone else have eye involvement??
    marlene

  8. #15
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    Default Re: Newly diagnosed

    Hi...I have a question concerning completion of first round of Ritixumab infusions
    i finished 4 rounds on Ritixumab infusions 10days ago. I got through the infusions pretty wel - not terrible side effects. Now, I am absolutely exhausted. Can barely walk up 6 steps....has anyone else had this happen after compeletion of Ritixumab therapy. I have a message into my dr, but am not scheduled to see her until October
    Thanks,

    Marlene

  9. #16
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    Default Re: Newly diagnosed

    I have not experienced that. You are doing the right thing by contacting your doctor.
    Masha

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