Alysia,

Not sure what is causing the pressure, but the docs believe it is the Pred and not disease. Nonetheless I'm going to squeak and make noise until I can get an MRI on the eyes. Overall though my optic nerves still look good. I pointed the doc to this article for context:

https://www.reviewofoptometry.com/ar...granulomatosis

I am with you in terms of acquiring the most knowledge one can get on this disease. Every case is unique so there is an infinite amount to learn, but I'm doing my best. I'm big into home diagnostics as well: urine test strips, BP/Blood Sugar/SpO2/Pulse.

When I meet with Dr. Villa Forte I will certainly get her recommendation on a neuropthalmologist with GPA experience.

Excited at what this place will bring to my life. I don't do Facebook or social media so this is new to me.