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Re: I might have Wegeners or not...
Did any Drs do a Anca, Proteinase PR-3, and a MPO Test to see if they are elevated, the chest Xray wont show anything unless you have masses in your lungs, doesnt sound like you have GPA, because when it comes on your going to be in a lot of pain and usually the sinuses will bleed and have a yellow tint to the blood, i was diagnosed in 2014 and had many flare ups. Hope they can find an answer for you
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Re: I might have Wegeners or not...
One of my first symptoms of Wegs long before I got sick enough to get diagnosed withWegs was scleritis in one eye. The optometrist prescribed treatment that solved the issue but mentioned that it could be a symptom of an underlying systemic disorder. And this proved to be correct a couple years later when Wegs was finally diagnosed after more symptoms and becoming very ill.
Knowledge is power! Wisdom is using it to make good decisions!
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