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Thread: Hello! Freshly diagnosed, New to the Forum, Hereís My Story.

  1. #11
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    Default Re: Hello! Freshly diagnosed, New to the Forum, Hereís My Story.

    My Mom is new to the GPA club. Anyone know if a 4.1 ANCA number is a bad number ?

  2. #12
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    Default Re: Hello! Freshly diagnosed, New to the Forum, Hereís My Story.

    Brittany,

    My mom who is 80 got diagnosed like you JUST A COUPLE MONTHS AGO. LOST HEARING - IN ONE EAR, LOST OPPOSITE HAND USE, LUNGS TOTALLY FULL. VERY VERY SICK,but now already in remission only 2.5 months later. The drugs do work, be hopeful. You will feel much better very soon from now.

  3. #13
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    Default Re: Hello! Freshly diagnosed, New to the Forum, Hereís My Story.

    When I have flare up my shoulders and arms lock up
    It normally take a month at 60 mg of pred to get the flare up down. I maintain at 15 mg of pred and methotrexate. But they always try the slowly lower the prednisone. . But it has failed once I get below 5 mg of pred.


    Sent from my iPhone using Tapatalk

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