I am looking for experiences any of you may have had with pneumocystis. My husband is the one with GPA and was diagnosed last night with this pneumonia - after a several month buildup to a stay in the hospital with severe breathing difficulty.

He does not have direct lung involvement with his GPA but this is the second infection to rear its ugly head in his lungs. The first was actinomycosis 3 years ago which ended in an upper lung lobectomy. These are both unfortunate ramifications of his compromised immune system.

And experiences you all may have and are willing to share are most appreciated.

Thank you

Aldena