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Thread: Gastro. Issues - Others?

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    Default Gastro. Issues - Others?

    Diagnosed surprisingly by endoscopy, of chronic gastritis and esophageal stricture requiring dilation. However, it was the lab-biopsy results from stomach polyps that gave the diagnosis. The Gastro. inquired if I had sinus issues (which is one of my major health symptoms for years alongside asthma). Apparently, respiratory issues eventually can affect the gastro region, when it's not taken care of. I'm trying to understand, and very frustrated to be developing more progressive health issues I don't want. I cannot determine the cause, but know this all seem to have originated in my sinuses & skin rashes.

    Problem? Told again, "See an ENT to get this addressed". I mentioned in prior threads, this has been a major struggle for so long. Even with this dx, I'm still unable to, as it seems no one in the ENT field is familiar with this, even with chronic sinus disease and debilitating ear symptoms etc. Seems tied altogether. However, I am currently not "in distress" requiring E.R., but just constantly feeling unwell and very weak.

    Do others have gastro. problems with their symptoms?
    Suggestions of what I should do next to get help, since I can't from the Otolaryngology field. Thx -H.
    Last edited by Helen; 02-16-2018 at 09:46 PM.

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    Default Re: Gastro. Issues - Others?

    Please try to get an appointment with a rheumatologist who specializes in wegs. You can find a list on the Vasculitis Foundation’s website. I think you’ll find they (1) know more about the disease and (2) are better able to understand your body as a complete system.
    Pete
    dx 1/11

    "Every day is a good day. Some are better than others." - unknown

    "Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD

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    Default Re: Gastro. Issues - Others?

    I agree with Pete get a rheumatologist who is a specialist with GPA
    Here is the link fron Vasculitis foundation of doctors https://www.vasculitisfoundation.org...l-consultants/
    or https://www.vasculitisfoundation.org/map-2/

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    Default Re: Gastro. Issues - Others?

    I am sorry, Helen, that you suffer from more issues. WG alone is sure enough.

    I have in addition to WG a second rare AI disease, collagenous colitis. After seeing about 7 gastro docs I have found a decent one who gave me a good treatment.

    Try to make a diary of your nutrition to check which foods are related to your symptoms. Dairy free for example makes me feel much better.

    I know how hard it is to be both sick and searching for a decent dr. Dont give up. Eventually you will find. Sending you prayers. Please update us.
    Alysia
    dx 2008


    Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
    https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
    "You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
    Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.

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    Default Re: Gastro. Issues - Others?

    Quote Originally Posted by Alysia View Post
    I am sorry, Helen, that you suffer from more issues. WG alone is sure enough.

    I have in addition to WG a second rare AI disease, collagenous colitis. After seeing about 7 gastro docs I have found a decent one who gave me a good treatment.

    Try to make a diary of your nutrition to check which foods are related to your symptoms. Dairy free for example makes me feel much better.

    I know how hard it is to be both sick and searching for a decent dr. Dont give up. Eventually you will find. Sending you prayers. Please update us.
    Can the medications we are taking to control GPA cause gastritis and other ailments?

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  10. #6
    Bing505z is offline Banned for being a douchebag
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    Default Re: Gastro. Issues - Others?

    Quote Originally Posted by seied View Post
    Can the medications we are taking to control GPA cause gastritis and other ailments?
    Prednisone. Just google pred' and gastro and see what pops up. You probably could live longer with a heroin addiction than continuing to pop prednisone pills like M&M's.

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    Default Re: Gastro. Issues - Others?

    Quote Originally Posted by Bing505z View Post
    Prednisone. Just google pred' and gastro and see what pops up. You probably could live longer with a heroin addiction than continuing to pop prednisone pills like M&M's.
    I just love consuming my preds
    Alysia
    dx 2008


    Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
    https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
    "You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
    Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.

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  14. #8
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    Default Re: Gastro. Issues - Others?

    Quote Originally Posted by seied View Post
    Can the medications we are taking to control GPA cause gastritis and other ailments?
    Good question. In my colitis group many friends have developed their microscopic colitis as a result of long term use of some meds. They didnt mention our meds, as far as I remember, but others. I know that cellcept might cause some kind of colitis although temporary. I wondered which med caused my colitis but I am not sure. Maybe the omperadex which I took with higher preds ? It was mentioned in my colitis group as a possible cause. What I also saw in that group is that many friends have more then one AI disease.
    Alysia
    dx 2008


    Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
    https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
    "You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
    Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.

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    Bing505z is offline Banned for being a douchebag
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    Default Re: Gastro. Issues - Others?

    Quote Originally Posted by Alysia View Post
    I just love consuming my preds
    Well mazel tov! Bon appetit! Onward and Upward! Cheers!

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    Default Re: Gastro. Issues - Others?

    During my journey to find all the areas that the Wegeners might have affected, I was sent to a gastroenterologist. The young lady said she had never heard of Wegeners but did some research prior to my appointment. She said "good news, bad news". The good news was that Wegeners does no affect the stomach. The bad news ... the meds have a devastating effect. How you take them can help. (with food or water, and when). Since I did not want to add any new drugs that she suggested to my daily group of hors d'oeuvres, I followed her suggestions and eliminated any problems that I had been experiencing. It has been a few years since and no further effects.
    Last edited by darl-p; 02-22-2018 at 05:48 AM.

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