User Tag List

Likes Likes:  15
Page 2 of 2 FirstFirst 12
Results 11 to 13 of 13

Thread: Lung nodules

  1. #11
    Join Date
    Feb 2013
    Location
    Israel
    Posts
    4,103
    Post Thanks / Like
    Mentioned
    32 Post(s)
    Tagged
    0 Thread(s)

    Default Re: Lung nodules

    In my last flare I got 3 nodules. After rtx they became a bit smaller. They are now about 3mm each and my pulmy said that they are tiny and that I dont need to worry about them. I dont. But I do cough more. Not sure if it is related to the nodules or if the coughing is due to other cause.
    Alysia
    dx 2008


    Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
    https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
    "You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
    Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.

  2. #12
    Join Date
    Dec 2013
    Location
    Mobile, Alabama
    Posts
    256
    Post Thanks / Like
    Mentioned
    1 Post(s)
    Tagged
    0 Thread(s)

    Default Re: Lung nodules

    Hi whatthewhat, I had never heard of that, but looked it up and am very curious. I wish I had seen your post before today, as I had my 3 month appointment with my Rheumy yesterday....I could have questioned him about that. I am interested in how you are tested for it. I will be doing some research. I had no lung problems until I stopped smoking. I smoked off and on and socially only (no packs a day, not that that matters....) but from 19 yrs of age to 50 years of age I smoked. I am 53 now, and have quit completely, I had a bronch 2 yrs ago, and my Dr. said my lungs did not show any serious areas of being effected by wegeners, and did not look like smoker lungs, but he sent the water that he rinsed my lungs with off for culture, and I had MRSA. Even though my smoking was off and on and just socially, I expected some damage from it. About 6 months after I stopped smoking, I started coughing a lot, and testing of my breathing showed I had "asthma" and I have been treated for it ever since. Thank you for the information!! Blessings,
    Life is a Gift~ Lilly

  3. #13
    Join Date
    Jan 2019
    Posts
    4
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default Re: Lung nodules

    Cavitary nodules were my main symptom and indicator for Wegener's, then ANCAs confirmed. Of course, scans should be kept to a minimum but you have to keep an eye on them. They can cause scarring. Horrible Prednisone is the main treatment along with standard WG protocol cytotoxins. 4mm is quite small. Nothing to be that concerned about. Still IT IS a worry isn't it. Esp when you cough up spots of blood, though, strangely, I'm used to that now. You need a good Chest specialist as well as your Immunologist.

  4. Likes Alysia liked this post
Page 2 of 2 FirstFirst 12

Bookmarks

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •