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Thread: Rituxan side effects better or worse?

  1. #11
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    Default Re: Rituxan side effects better or worse?

    I have had RTX infusions since 2013. I think the count is now at 20. I usually have my infusions on a Thursday. I've found that I have a steroid infused insomnia night, the first night. The next day is rough, but mostly resting. Day three for me is the crash day. On that day, I do not want to get out of bed except to eat and go to the bathroom--and I do eat and drink as much as I can tolerate. Once Monday rolls around, I am usually good to go to work full time for the whole week. About 2 weeks after the second infusion (4 weeks from the first one), I have some fatiguing days, but they are just days of feeling run down and tired, nothing more.

    That's my experiences.

    Mike
    MikeG-2012

    "You never know how strong you are until being strong is the only choice you have"


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  3. #12
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    Default Re: Rituxan side effects better or worse?

    Last Wednesday I just had my first IV, out of 2, of my every 6 months rtx. Like Mike, I think I had about 20 IV so far. This time I had excellent nurses. They brought me good pillow, 2 blankets, it was quiet this time, so I slept from about 09:30 to 14:30. I woke up only for bp checks, a sandwich or so and back to sleep. I now also ask to get fluids IV before starting rtx and after it, so it keeps me hydrated. Back at home I rested and went again to sleep at 20:00. So many hours of sleep which really helped me not to feel too bad. I think this is the key to bear it, to sleep as much as possible.
    Maybe also I am lucky that the high IV steroids didnt disturb my sleep, only made my cooking better; the day after, the Shefferds' pie turned out yummy
    Alysia
    dx 2008


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  5. #13
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    Default Re: Rituxan side effects better or worse?

    Quote Originally Posted by Alysia View Post
    Maybe also I am lucky that the high IV steroids didn't disturb my sleep, only made my cooking better; the day after, the Shefferds' pie turned out yummy
    Yes, you are lucky! I'm jealous!!
    MikeG-2012

    "You never know how strong you are until being strong is the only choice you have"


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  7. #14
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    Default Re: Rituxan side effects better or worse?

    Sleep and pie.....happy to hear it.

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    Default Re: Rituxan side effects better or worse?

    Quote Originally Posted by MikeG-2012 View Post
    I have had RTX infusions since 2013. I think the count is now at 20. I usually have my infusions on a Thursday. I've found that I have a steroid infused insomnia night, the first night. The next day is rough, but mostly resting. Day three for me is the crash day. On that day, I do not want to get out of bed except to eat and go to the bathroom--and I do eat and drink as much as I can tolerate. Once Monday rolls around, I am usually good to go to work full time for the whole week. About 2 weeks after the second infusion (4 weeks from the first one), I have some fatiguing days, but they are just days of feeling run down and tired, nothing more.

    That's my experiences.

    Mike
    Interesting. Iím at the 2 weeks after the last Rituxan infusion and feel like crap. Muscle and joint pain and fatigue. Iím hoping I get to move to every 6 months soon.

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