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Thread: Rituxan side effects better or worse?

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    Default Rituxan side effects better or worse?

    I was recently diagnosed with a WG flare after many years (with thanks to those who urged me to get to the doctor without delay) and have been scheduled for Rituxan starting next week, once a week for four weeks. My initial treatment in about 1998 was daily Cytoxan pills for many months, which were pretty toxic and had their own side effects, but started making me feel well overall pretty quickly.

    When I read the posts about Rituxan here, it sounds like the side effects are somewhat like flu symptoms--fatigue, etc. However, those are the symptoms I am already having from WG. Does Rituxan make those symptoms worse, for those who have taken it? Does it give a subjective feeling of relief before long? Not sure that this question makes sense, and everyone is obviously different, but I'm trying to get a subjective sense from others as to whether it's going to make me feel worse, better, or just substitute some flu-like symptoms for the ones it is relieving!

    Also, were you able to drive yourself to the treatments and home? Not entirely sure how much independence I can expect compared to my usual very independent life!

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    Default Re: Rituxan side effects better or worse?

    Hi Cat P. (Btw, are you a cat person ? I am)
    After my first rtx IV years ago I was too tired to drive back home. In the last years I sleep during most of the IV and I can drive after it. But I suggest you to ask someone to drive you until you will know how it affects you.
    I dont have flu like symptoms after rtx. Only BIG fatigue during the week after. So try to take as much rest as you feel like. Just imagine the battle that will be going on inside your body, and let this miraculous medicine do its wonders.
    Alysia
    dx 2008


    Here, I found my sweet love, my beautiful Phil
    https://www.wegeners-granulomatosis....emorial-thread
    During long scary weeks at the hospital, my sweetie used to tell me, what I keep on telling him:"your love is what I live on".
    Rest in Peace, my brave Batman, take care of your weggies from heaven, and get a place ready for me, next to you, until we meet again.

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    Default Re: Rituxan side effects better or worse?

    @Cat P.

    I agree with Alysia about driving.

    My post-treatment symptoms include wakefulness the night following treatment followed by mild fatigue the day after. I get a big dose of steroids, some Tylenol, and some Benadryl with my rtx, so I believe the pre-treatment drugs have more to do with my symptoms than the rtx itself.
    Pete
    dx 1/11

    "Every day is a good day. Some are better than others." - unknown

    "Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD

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    Default Re: Rituxan side effects better or worse?

    Thanks Alysia and Pete; it is nice to get a sense of what to expect. Also good to work within the limits in terms of scheduling with work and time off.
    Alysia, yes, I'm a cat person! Nice to have them around when you're not feeling great, isn't it?

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    Default Re: Rituxan side effects better or worse?

    Quote Originally Posted by Cat P. View Post
    Thanks Alysia and Pete; it is nice to get a sense of what to expect. Also good to work within the limits in terms of scheduling with work and time off.
    Alysia, yes, I'm a cat person! Nice to have them around when you're not feeling great, isn't it?
    Cats are angels on earth.
    Did you know that rtx was first developed from chinese hamster ? https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4171018/

    I copy:
    "The first quantities of rituximab were generated by heterologous expression from a Chinese hamster ovary (CHO) cell in hollow fiber reactors".


    I say that that's why cats are following me everywhere I go...

    Good luck at your infusions.
    Last edited by Alysia; 02-17-2018 at 11:42 PM.
    Alysia
    dx 2008


    Here, I found my sweet love, my beautiful Phil
    https://www.wegeners-granulomatosis....emorial-thread
    During long scary weeks at the hospital, my sweetie used to tell me, what I keep on telling him:"your love is what I live on".
    Rest in Peace, my brave Batman, take care of your weggies from heaven, and get a place ready for me, next to you, until we meet again.

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