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Thread: Transplant

  1. #21
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    Default Re: Transplant

    Dear Pete,
    I am sorry it takes SO long. Stay strong. I think that they do it this way in order to make sure that they afford you the best possibility. Time will tell. Is there a way to publish your search for a kidney ? In newspapers or on the internet or maybe in a TV show ? We have a weggie friend on facebook from UK who was in the TV show "a year later" first with her bad saddle nose and then with her new nose. I can ask her if you will want me to, to see if she can help through that TV show or similar.
    Keeping you in my daily prayers. Dr. Phil is also praying for you from his good place in the presence of Our Lord ❤
    Alysia
    dx 2008


    Here, I found my sweet love, my beautiful Phil
    https://www.wegeners-granulomatosis....emorial-thread
    During long scary weeks at the hospital, my sweetie used to tell me, what I keep on telling him:"your love is what I live on".
    Rest in Peace, my brave Batman, take care of your weggies from heaven, and get a place ready for me, next to you, until we meet again.

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  3. #22
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    Default Re: Transplant

    Hi Alysia,
    I saw the TV episode about the lady with the new nose. It's available on ITV's catch up service in the UK. Others may be able to watch it if using a VPN.
    I'm not looking for a deceased donor, at least for the time being. There is only one paired/pooled organ donor exchange scheme in the UK, so if there are other people in my situation, they'll already be on the scheme.
    I can increase my chances of getting a match by having more people offer their kidney for a swap. But I can't bring myself to ask anyone. My friends and family know I need a kidney, so if they wanted to offer me one, they would have already. I don't want to put people in a position where they feel awkward saying "no" or say "yes" when they'd rather not want to.
    I could try and "advertise" my need for a kidney, but I'm no more special or deserving of one than all the other people waiting.

    If l finally give in and start dialysis (like some of the drs think I should), I may have a different view and try harder for transplantation.
    Diagnosed April 1995

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  5. #23
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    Default Re: Transplant

    Quote Originally Posted by gilders View Post
    Hi Alysia,
    I saw the TV episode about the lady with the new nose. It's available on ITV's catch up service in the UK. Others may be able to watch it if using a VPN.
    I'm not looking for a deceased donor, at least for the time being. There is only one paired/pooled organ donor exchange scheme in the UK, so if there are other people in my situation, they'll already be on the scheme.
    I can increase my chances of getting a match by having more people offer their kidney for a swap. But I can't bring myself to ask anyone. My friends and family know I need a kidney, so if they wanted to offer me one, they would have already. I don't want to put people in a position where they feel awkward saying "no" or say "yes" when they'd rather not want to.
    I could try and "advertise" my need for a kidney, but I'm no more special or deserving of one than all the other people waiting.

    If l finally give in and start dialysis (like some of the drs think I should), I may have a different view and try harder for transplantation.
    I understand what you mean and I admire your courage and strength. Hang in there. You are embraced by many prayers.
    Alysia
    dx 2008


    Here, I found my sweet love, my beautiful Phil
    https://www.wegeners-granulomatosis....emorial-thread
    During long scary weeks at the hospital, my sweetie used to tell me, what I keep on telling him:"your love is what I live on".
    Rest in Peace, my brave Batman, take care of your weggies from heaven, and get a place ready for me, next to you, until we meet again.

  6. Likes drz, gilders, Jaha liked this post
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