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Thread: Transplant

  1. #11
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    Default Re: Transplant

    Well that sure does suck

    My fingers will be crossed for you to have an amazing 2018 with everything finally falling in place
    Keep Smiling
    Michelle


    Live your life in a way that you wouldn't be ashamed to sell the family parrot to the town gossip - WILL ROGERS

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  3. #12
    Join Date
    Sep 2013
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    Default Re: Transplant

    Quote Originally Posted by NatriceRomeo View Post
    I was wondering about the anti-rejection drugs. Do you know what they will prescribe? I’m just wondering because I know imuran is sometimes used & it would be nice (though I understand that it sucks since your in a drug free remission right now) to “kill two birds with one stone” as they say??
    Thanks Natty.
    Azathioprine was a great drug for me for many years. I couldn't tolerate Cyclophosphamide when I was first diagnosed and as I had kidney failure Methotrexate wasn't an option. There wasn't any of the newer drugs like Rituximab over 20 years ago. I achieved remission with Aza and pred. For about 20 years I managed all my relapses with pred and Aza, but about 4 years ago Aza stopped working as well as it used to. Not only that, but I had immature, odd shaped, red blood cells which some of the drs blamed the many years use of Aza.

    I have been told that I will be having Tracolimus and pred, but as I'm a high risk match, I'll also be having mycophenolate. I've not had mycophenolate, but know others have had this for treatment of Wegener's.
    Diagnosed April 1995

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  5. #13
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    Default Re: Transplant

    Quote Originally Posted by gilders View Post
    Thanks Natty.
    Azathioprine was a great drug for me for many years. I couldn't tolerate Cyclophosphamide when I was first diagnosed and as I had kidney failure Methotrexate wasn't an option. There wasn't any of the newer drugs like Rituximab over 20 years ago. I achieved remission with Aza and pred. For about 20 years I managed all my relapses with pred and Aza, but about 4 years ago Aza stopped working as well as it used to. Not only that, but I had immature, odd shaped, red blood cells which some of the drs blamed the many years use of Aza.

    I have been told that I will be having Tracolimus and pred, but as I'm a high risk match, I'll also be having mycophenolate. I've not had mycophenolate, but know others have had this for treatment of Wegener's.
    Thank you Gliders,
    I truely hope the transplant medications work as well as control WG. I was on Aza and it stopped working for me as well. I tried mycophenolate but it never worked. I hope it does wonders for you! Good luck!
    Natty


    Sent from my iPhone using Tapatalk

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  7. #14
    Join Date
    Feb 2013
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    Default Re: Transplant

    Thanks for the update, Pete. That's a long long time of waiting.... All you can do is breath deeply and pray. You are in God's hands and he loves you.
    I know few weggies who are on cellcept, which should be as good as aza or mtx.
    Hang in there and please update us. I keep you allways in my thoughts and prayers ❤
    Alysia
    dx 2008


    Here, I found my sweet love, my beautiful Phil
    https://www.wegeners-granulomatosis....emorial-thread
    During long scary weeks at the hospital, my sweetie used to tell me, what I keep on telling him:"your love is what I live on".
    Rest in Peace, my brave Batman, take care of your weggies from heaven, and get a place ready for me, next to you, until we meet again.

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  9. #15
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    Oct 2010
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    Default Re: Transplant

    I'm wishing you all the best for a speedy and successful transplant.��
    Jana


    Do not fear anything, just do it afraid!
    It does not matter how slowly you go, as long as you do not stop!


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