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Thread: Transplant

  1. #31
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    Default Re: Transplant

    Gilders, I cannot put into words how sorry I am that you are going through this treacherous roller coaster ride. Such positive hopeful news to be followed with a major let down had to be a hard pill to swallow. My husband and I are wishing, hoping and praying that somehow there will be a more expeditious way to solve your situation. Please, keep all of us posted on your status.
    Masha

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  3. #32
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    Default Re: Transplant

    Gliders, my heart is broken for you. I'm so sorry, and sending thoughts and prayers....miracles still happen, I'm praying for one for you. Blessings, Lilly
    Life is a Gift~ Lilly

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  5. #33
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    Feb 2013
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    Default Re: Transplant

    Dear Pete,
    My heart is going out to you... keep on fighting in all ways.
    Can the 2 clinics make a consultation about you, maybe together with some experts who understand how rtx works, in order to come to agreement what would be the best for you ?
    How is your nose so far ?
    Keeping you allways in my prayers ❤
    Alysia
    dx 2008


    Here, I found my sweet love, my beautiful Phil
    https://www.wegeners-granulomatosis....emorial-thread
    During long scary weeks at the hospital, my sweetie used to tell me, what I keep on telling him:"your love is what I live on".
    Rest in Peace, my brave Batman, take care of your weggies from heaven, and get a place ready for me, next to you, until we meet again.

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  7. #34
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    Sep 2013
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    Default Re: Transplant

    Hi Alysia,
    The RTX experts are consulting with their transplant team. Then hopefully, they'll contact my transplant team and decide what is now happening.

    I was prescribed some antibiotics and my nose is a little better I'm quite certain that it's a slight infection on an already delicate, permanently damaged nose, rather than a relapse. I think the reoccurrence of B cells is RTX losing it's effectiveness quicker than expected, rather than me relapsing.

    Hope you are well.
    Diagnosed April 1995

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