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Thread: Transplant

  1. #261
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    Default Re: Transplant

    Sounds like good news for you. My kidney doctor says we can function OK at that level.

    Quote Originally Posted by gilders View Post
    Just a brief update on the kidneys.
    For the last 3 months my function has been very stable at 39-41%, so it looks like 40% is going to be my long term level, which I'm very happy with so long as it remains stable.

    Hope you all have a Happy and Healthy Christmas and New Year.
    Knowledge is power! Wisdom is using it to make good decisions!

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  3. #262
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    Default Re: Transplant

    @gilders

    Merry Christmas, Pete!! Iím glad to hear your kidney continues to be effective. Hope that continues into the new year and beyond!!
    Pete
    dx 1/11

    "Every day is a good day. Some are better than others." - unknown

    "Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD

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  5. #263
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    Default Re: Transplant

    40% sounds like a good results.
    Keep on fighting the odds Pete

    May your Christmas holiday season be a wonderful "pain free" one
    Keep Smiling
    Michelle


    Live your life in a way that you wouldn't be ashamed to sell the family parrot to the town gossip - WILL ROGERS

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  7. #264
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    Default Re: Transplant

    Great numbers! Merry Christmas my friend!
    Jana


    Do not fear anything, just do it afraid!
    It does not matter how slowly you go, as long as you do not stop!


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  9. #265
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    Default Re: Transplant

    Thanks for the great update ! Merry Christmas and blessed new year !
    Alysia
    dx 2008


    Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
    https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
    "You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
    Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.

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  11. #266
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    Default Re: Transplant

    Pete, I am also very thankful for your update, as we hadn't heard from you for awhile. I was beginning to worry. I was going to ask @Alysia, because she knows everything! ha, ha. I'm very happy to hear that your kidney is stable and you feel fine about the numbers. Such good news to start 2020 on an auspicious note. Happy New Year!!!

    Sent from my MotoE2(4G-LTE) using Tapatalk
    Anne, dx'ed April 2011

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  13. #267
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    Default Re: Transplant

    Good to hear that you are doing well Pete!

    Have a Safe, Healthy and Happy New Year!
    MikeG-2012

    "You never know how strong you are until being strong is the only choice you have"


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  15. #268
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    Default Re: Transplant

    Another quick update.
    Kidney function is still fairly stable. It's dropped from 40% to 38%, but so long as it doesn't drop below 35% I'm happy.

    I've also had my appointment at Addenbrooke's with the vasculitis team. I have been suffering with more joint pain and severe back pain. My blood results look good (i.e. no inflammation), so it's looking like permanent damage to joints rather than any Wegener's activity (according to the Dr). I have been asked to try Hydroxychloroquine. As my joints aren't hurting due to inflammation it's unlikely to help and I haven't felt any improvement yet, but I'll give it a few more weeks.
    Diagnosed April 1995

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  17. #269
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    Default Re: Transplant

    Quote Originally Posted by gilders View Post
    Another quick update.
    Kidney function is still fairly stable. It's dropped from 40% to 38%, but so long as it doesn't drop below 35% I'm happy.

    I've also had my appointment at Addenbrooke's with the vasculitis team. I have been suffering with more joint pain and severe back pain. My blood results look good (i.e. no inflammation), so it's looking like permanent damage to joints rather than any Wegener's activity (according to the Dr). I have been asked to try Hydroxychloroquine. As my joints aren't hurting due to inflammation it's unlikely to help and I haven't felt any improvement yet, but I'll give it a few more weeks.
    Thanks for the update, Pete. I am glad your kidney is stable after all, and I keep you in my prayers.

    I've found out that lack of vitamin C can also cause joints pains. Can you check your vitamin C in your blood ? Are you allowed to take vitamin C supplement ?

    Also I wonder if the rainy days and all that humidity are also responsible for the aching joints.
    Alysia
    dx 2008


    Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
    https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
    "You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
    Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.

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  19. #270
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    Default Re: Transplant

    Hi gliders,
    So glad your kidney function has stabilised! It is a relief! Hereís hoping you continue to grow stronger every day!
    Nattt


    Sent from my iPhone using Tapatalk

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