-
Re: Transplant
Sounds like very good news, Pete ! What a roller coaster ride you have been on! We hope and pray that you continue to have great news for us! Maybe you can tolerate a more moderate, or eventually low dose of pred, or better yet, none at all! Best of luck and thanks for keeping us posted!
Sent from my MotoE2(4G-LTE) using Tapatalk
Anne, dx'ed April 2011
-
Post Thanks / Like - 3 Likes
-
Re: Transplant
I'm just catching up on here Pete.
I hope you now have some good news on your kidney, and that the improvement is still happening.
I agree that pred is evil, but like most of us, I wouldn't be here without it.
Sending healing prayers and more pain free days, to you.
Keep on functioning little kidney, you can do it
Keep Smiling
Michelle
Live your life in a way that you wouldn't be ashamed to sell the family parrot to the town gossip - WILL ROGERS
-
Post Thanks / Like - 4 Likes
-
Re: Transplant
Unfortunately the biopsy results hadn't come through by yesterday, so they won't be ready until after Easter now. After the surprising improvement of my kidney function, I'm not too worried about the delay as things seem to be heading in the right direction.
My pain level is completely manageable. I'm a little concerned that I'm still struggling to walk up stairs and up hill without feeling breathless. Just having a shower leaves me worn out. But I guess recovery from major surgery may knock you back a bit, before you start to feel the full improvements.
But mentally I'm SO much better. I wake up feeling like I've actually had some sleep and I want to get out of bed. I've not felt like that for a very long time now. My brain has been so "foggy" and tired 24 hrs/day and now I actually feel "awake".
I think the worse thing to come will be my stent removal. I received the appointment letter yesterday for April 30th. The stent is in place between the ureter and bladder. I will have a cystoscope (with some sort of grabbing tool) inserted through my urethra, through my prostate, then bladder. Then the stent will be grabbed and dragged back through. Apparently it is more uncomfortable for males as the urethra in both men and women can be numbed with anaesthetic, but it doesn't reach the prostate
Diagnosed April 1995
-
Post Thanks / Like - 3 Likes
-
Re: Transplant
@gilders
Any chance the procedure can be done under “twilight” anesthetic? When I had my colonoscopy, that’s what they gave me. It was two drugs, one of which was fentanyl. I was kind of awake, but didn’t feel or remember anything about the procedure.
Pete
dx 1/11
"Every day is a good day. Some are better than others." - unknown
"Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD
-
Post Thanks / Like - 3 Likes
-
Re: Transplant
Hi Pete,
I could ask about that, but in truth I'll probably just "man up" and let them get on with it. I hate making a fuss
I had a sigmoidoscopy a couple of years ago and before the procedure, I was offered a choice of an injection of some sort of pain relief/relaxant, or some gas/air mix. I lied on my side and the nurse asked which I'd prefer. I said "gas/air", the dr said "he'll be ok, he doesn't need anything". The nurse responded "but he's requested gas/air", the dr still went ahead without me having any sort of pain relief.
So I wouldn't be surprised if I asked for anything beyond the local anaesthetic gel, that I'd get told "you'll be fine with the gel".
Diagnosed April 1995
-
Post Thanks / Like - 1 Likes
-
Re: Transplant
Just got today's blood results through my eGFR has dropped 9% to 42%. Bit gutted, I was so pleased when it had jumped to 51% after 3 days of IV pred. I'm only on 20mg oral pred/day now. I wonder if if my kidney is needing a stronger dose to keep it happy?
Hope there's no delay on biopsy results.
Diagnosed April 1995
Bookmarks