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  1. #1
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    Default Re: Transplant

    Thank you all for your positive comments.
    After all the set backs and delays, I think I'll only really believe it's going to happen once they've give me an actual date when I see them within a few weeks.

    I'll update as soon as I get a date.
    Diagnosed April 1995

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  3. #2
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    Default Re: Transplant

    So happy to hear this, Pete! You and your dad will be in my thoughts, and best wishes for a smooth transition. We'll be anxiously awaiting the news that it is done and you are both safe at home.

    Sent from my MotoE2(4G-LTE) using Tapatalk
    Anne, dx'ed April 2011

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  5. #3
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    Default Re: Transplant

    Great news

    More prayers from my point on the globe. You are embraced from all over the world, Pete.

    Hang in there. Only a bit more to wait.
    Alysia
    dx 2008


    Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
    https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
    "You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
    Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.

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  7. #4
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    Default Re: Transplant

    Thinking of you! Hope all goes well!


    Sent from my iPhone using Tapatalk

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  9. #5
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    Default Re: Transplant

    Grrrrr!
    After waiting 3 years for a transplant date, they have postponed it for a further 2 weeks (now March 19th).
    The surgeons have decided that due to my increased risks (mostly from bleeding) they are doing the operation at the same time for me and my father. It was originally planned for my dad to go to theatre in the morning and for me to go around lunchtime. But as I am at increased risk of not being able to receive my dad's kidney, they want to begin by cutting me open and if all seems well, they will begin to operate on my dad. Therefore they need 2 operating theatres and 2 surgical teams and the soonest date is a further 2 weeks away.
    Last edited by gilders; 02-09-2019 at 01:35 AM.
    Diagnosed April 1995

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  11. #6
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    Default Re: Transplant

    Hoping the surgeons’ new plan works well. I can’t imagine how frustrating this new delay must be for you and your Dad.
    Pete
    dx 1/11

    "Every day is a good day. Some are better than others." - unknown

    "Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD

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  13. #7
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    Default Re: Transplant

    Sorry for the delay, although the new plan sounds better, more safe. Praying it will all turn out for good. Hang in there, we are waiting with you and praying.
    Alysia
    dx 2008


    Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
    https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
    "You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
    Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.

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  15. #8
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    Default Re: Transplant

    Quote Originally Posted by Alysia View Post
    Sorry for the delay, although the new plan sounds better, more safe. Praying it will all turn out for good. Hang in there, we are waiting with you and praying.
    Hi Alysia,
    It probably is for the best, I just hate messing people about, especially when they're trying to help me out. I know it's not my fault or choice, but I still feel guilty.
    My dad has already said that if I can't have his kidney, he's happy for it to go to someone else (therefore the original date could be kept IMO), but the transplant coordinators said that even though my dad is happy to give to someone else, their main concern is getting the kidney to the original recipient and passing it on to someone else is done as a last option.
    Diagnosed April 1995

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  17. #9
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    Default Re: Transplant

    Thanks Pete,
    This delay makes it more likely I'll need a couple of dialysis sessions before the transplant, which I hoped to avoid. Plus my wife, 2 sons and son-in-law have all booked time off to help with looking after the dog, taking wife to and from hospital, me home from hospital etc. Plus there's various banking issues we had to rearrange while my wife took a month of unpaid leave from work. So yes, very frustrating.

    At least they haven't cancelled it, or delayed it for an even longer period.
    Diagnosed April 1995

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  19. #10
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    Default Re: Transplant

    Hope all goes well for you and your Dad tomorrow!!
    Pete
    dx 1/11

    "Every day is a good day. Some are better than others." - unknown

    "Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD

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