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Thread: Transplant

  1. #181
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    Default Re: Transplant

    Great news, Pete, our prayers are heard - Praise The Lord, happy dance

    I love to read how you explain the results' meanings and analyze them. This thread is a treasure for anyone with kidneys' involvement.

    Will you need to stay on the 20mg pred then ? For how long ? How do you feel with it ?

    Prayers continued, with much love.
    Last edited by Alysia; 04-25-2019 at 02:35 PM. Reason: Spelling
    Alysia
    dx 2008


    Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
    https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
    "You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
    Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.

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  3. #182
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    Default Re: Transplant

    Gosh you have been on that never ending Wegener's roller coaster over the last few days

    Fantastic news for you now

    Thank you for writing it all up for us, in a way that we can understand.

    Keep on working little kidney

    Hey, do you have a name for it yet? Tom, Barry ??
    Keep Smiling
    Michelle


    Live your life in a way that you wouldn't be ashamed to sell the family parrot to the town gossip - WILL ROGERS

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  5. #183
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    Default Re: Transplant

    Quote Originally Posted by mishb View Post

    Hey, do you have a name for it yet? Tom, Barry ??
    Well, I received it from my 66 year dad, so maybe I should call it "Old faithful"

    Pensioners get various benefits and discounts. As at least part of me is of a pensionable age, maybe I should start applying?
    Diagnosed April 1995

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  7. #184
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    Default Re: Transplant

    Quote Originally Posted by Alysia View Post
    .

    Will you need to stay on the 20mg pred then ? For how long ? How do you feel with it ?
    Just received phone call. The surgeon spoke to transplant drs and it has been decided that I can reduced pred from 20mg to 10mg from tomorrow. I think they will monitor kidney function and so long as it doesn't begin to decline as the pred is lowered, I will slowly taper off it.
    The side effects aren't bad at the moment, they tend to start after about a month with me. They are making me extremely hungry though, but I'm being sensible with food. Hopefully I'll get below 5mg before the more serious side effects kick in (I usually tolerate 5mg or less).

    I just need this stent removing on Tuesday, then that should be the worst of it over with. I'll only be going to hospital once a week and can start living a normal life. The rejection drugs will hopefully help keep my Wegener's in check too.
    Diagnosed April 1995

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  9. #185
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    Default Re: Transplant

    Pete,
    I am so happy for you and pray for continued improvements everyday. You are a true Warrior! You have been quite brave and patient with all that you have been through. I am wishing you all the best with your taper. Thanks for keeping us updated, it has educated all us about the transplant procedure. Keep on keep'n on!
    Jana


    Do not fear anything, just do it afraid!
    It does not matter how slowly you go, as long as you do not stop!


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  11. #186
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    Default Re: Transplant

    Quote Originally Posted by gilders View Post
    Well, I received it from my 66 year dad, so maybe I should call it "Old faithful"

    Pensioners get various benefits and discounts. As at least part of me is of a pensionable age, maybe I should start applying?
    Your sense of humor is outrageous!! Glad to see it!! Lol
    Pete
    dx 1/11

    "Every day is a good day. Some are better than others." - unknown

    "Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD

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  13. #187
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    Default Re: Transplant

    The stent came out earlier today.
    I watched the video feed while the nurse "fished around" for the stent. It was a bit tricky to grab as the stent had managed to to lie completely flat against my bladder wall. Therefore she struggled to grab the stent without grabbing my bladder wall.
    If anything, even with the slight difficulties, it wasn't quite as bad as I was expecting.

    So happy that that should be the last of the invasive procedures.

    I'll be back at hospital tomorrow for my, now weekly, check-up. So long as my kidney function is stable/improved, I think things should go very well from now on.

    More good news, my INR was in range, so after 7 weeks of injecting my stomach with heparin, I no longer need them. Also, after 6 weeks of wearing compression stockings, I no longer need them.
    Diagnosed April 1995

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  15. #188
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    Default Re: Transplant

    @gilders

    Iím glad to see the good news keeps on coming!!!
    Pete
    dx 1/11

    "Every day is a good day. Some are better than others." - unknown

    "Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD

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  17. #189
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    Default Re: Transplant

    Quote Originally Posted by Pete View Post
    @gilders

    Iím glad to see the good news keeps on coming!!!
    Me, too!

    Sent from my MotoE2(4G-LTE) using Tapatalk
    Anne, dx'ed April 2011

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  19. #190
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    Default Re: Transplant

    So happy that you have good news finally! Still thinking of you everyday & follow your recovery.
    Natty


    Sent from my iPhone using Tapatalk

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