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Thread: Almost Famous

  1. #1
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    Smile Almost Famous

    Exciting news… On Wednesday morning I will be the focus of a lecture by Dr. John H. Stone (my rheumatologist and Wegener’s expert) at Harvard Medical School! He is going to lecture Harvard Medical School students on Vasculitis and Wegener’s Granulomatosis from 10:00 to 10:45 followed by a 15 min Q&A. From 11:00 to 11:30 he’s going to discuss my case. I’ll be there and participate in the Q&A sessions. Dr. Stone said it’s exciting for the class to have a newly diagnosed Wegener’s patient that was treated early and is most probably on the right path to remission. He also said it should be very educational for me. I think the lecture will focus on how they came up with the diagnosis as my case initially threw them for a loop.
    Vasculitis Foundation medical consultants provide advice by telephone or e-mail to physicians who treat patients with Vasculitis.
    If you don’t have a Wegener’s doctor, please click the link and contact one or Sangye will be very upset! http://www.vasculitisfoundation.org/node/44

  2. #2
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    Too cool! That would be interesting to listen too.

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    THAT IS GREAT! Will this be videotaped?

  4. #4
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    Default great News!

    That IS great! Wish all of us could be there.Keep us posted as to how things go.

  5. #5
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    That's great, Gary! Ask him if they'd tape it for youtube. There are other Wegs videos on youtube that have mistakes or outdated info in them. It'd be great to have one with accurate info.

    I'm giggling imagining one of my Wegs doctors doing the same with me. Those students would never get out of the class and no one would have any idea what to recommend. When my current flare was finally diagnosed last summer, he said "There's nothing about you that is black and white. You're all gray."

  6. #6
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    I disagree. Sangye you are a bright color like yellow not grey!

    That is awesome Gary! I wish I could be there but Sangye's idea of a video is also great.

  7. #7
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    LOL-- yellow or gray? I'm looking at my own yellow cockatiel who already thinks I'm his girlfriend.

  8. #8
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    hahahaha....are u graying?

    so u have a lovebird...nice to know someone in Maryland has you peg for his chick

  9. #9
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    LOL-- yes, my little birdy boy is in love with me. Sings to me, does little courting dances and drills his beak on the cage bars.

  10. #10
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    I have visions of the bird dancing for you Sangye.

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