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Thread: Tapering on predizone

  1. #31
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    Default Re: Tapering on predizone

    Thanks Alysia, Nat and Pete for your replies.

    I'm starting to get slightly better. At least I can walk a little again.
    I'm also getting physical therapy 3x/week which helps a lot with these roving arthritic pains.
    I think I'm going through prednisone withdrawal and not a relapse (?). It's so scary not knowing for sure.

    Fortunately, the monthly labs (CMP, CBC w/diff) came out fine.
    I'll get a rheuma factor, sed rate, ANCA panel in a month.
    Dr. recommended that I restart taking Pred 3.5 mg/day, but I'll try to hold off as long as the labs remain ok.

    I read somewhere that the body produces an equivalent of 5mg of prednisone.
    My 1mg/2weeks tapering from 5mg down to zero was a bit cold-turkey and painful.
    Perhaps going from 5 to none jump starts the pituitary glands back to work.

    Ed.

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  3. #32
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    Default Re: Tapering on predizone

    Quote Originally Posted by NatriceRomeo View Post
    I am currently tapering off prednisone myself. I have a terrible time-my body really likes it. I’m going down 1 mg a month.


    Sent from my iPhone using Tapatalk
    Natrice,

    How far have you come?
    My 2week/mg until zero was draconian, but I think Mtx is doing it's job because the mini-relapse starting to subside.

    Ed.
    Last edited by seied; 05-30-2018 at 02:45 AM. Reason: typo

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  5. #33
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    Default Re: Tapering on predizone

    Quote Originally Posted by seied View Post
    Natrice,

    How far have you come?
    My 2week/mg until zero was draconian, but I think Mtx is doing it's job because the mini-relapse starting to subside.

    Ed.
    Hi Ed,
    So far I have made it down to 4 mg prednisone a day..


    Sent from my iPhone using Tapatalk

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  7. #34
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    Default Re: Tapering on predizone

    It took me 8 months to get from 2mg to 1mg - it was hard and painful and some days I had to take 5mg just to help settle things down (by some days I mean, probably once a month)
    I have now been on 1mg for the past 2 years and according to my Rheumy, I will not come off it. Although he once said that I would never get lower than 5mg
    Apparently, 1 or 2mg is the top up that my adrenals need, to keep on top of the WG pains. I'm fine with that.

    Good luck to everyone currently trying to reduce.......Remember, don't be in a hurry, slow and slower does it
    Keep Smiling
    Michelle


    Live your life in a way that you wouldn't be ashamed to sell the family parrot to the town gossip - WILL ROGERS

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