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Re: Tapering on predizone
Thanks Alysia, Nat and Pete for your replies.
I'm starting to get slightly better. At least I can walk a little again.
I'm also getting physical therapy 3x/week which helps a lot with these roving arthritic pains.
I think I'm going through prednisone withdrawal and not a relapse (?). It's so scary not knowing for sure.
Fortunately, the monthly labs (CMP, CBC w/diff) came out fine.
I'll get a rheuma factor, sed rate, ANCA panel in a month.
Dr. recommended that I restart taking Pred 3.5 mg/day, but I'll try to hold off as long as the labs remain ok.
I read somewhere that the body produces an equivalent of 5mg of prednisone.
My 1mg/2weeks tapering from 5mg down to zero was a bit cold-turkey and painful.
Perhaps going from 5 to none jump starts the pituitary glands back to work.
Ed.
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Re: Tapering on predizone
Originally Posted by
NatriceRomeo
I am currently tapering off prednisone myself. I have a terrible time-my body really likes it. I’m going down 1 mg a month.
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Natrice,
How far have you come?
My 2week/mg until zero was draconian, but I think Mtx is doing it's job because the mini-relapse starting to subside.
Ed.
Last edited by seied; 05-30-2018 at 03:45 AM.
Reason: typo
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Re: Tapering on predizone
Originally Posted by
seied
Natrice,
How far have you come?
My 2week/mg until zero was draconian, but I think Mtx is doing it's job because the mini-relapse starting to subside.
Ed.
Hi Ed,
So far I have made it down to 4 mg prednisone a day..
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Re: Tapering on predizone
It took me 8 months to get from 2mg to 1mg - it was hard and painful and some days I had to take 5mg just to help settle things down (by some days I mean, probably once a month)
I have now been on 1mg for the past 2 years and according to my Rheumy, I will not come off it. Although he once said that I would never get lower than 5mg
Apparently, 1 or 2mg is the top up that my adrenals need, to keep on top of the WG pains. I'm fine with that.
Good luck to everyone currently trying to reduce.......Remember, don't be in a hurry, slow and slower does it
Keep Smiling
Michelle
Live your life in a way that you wouldn't be ashamed to sell the family parrot to the town gossip - WILL ROGERS
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